Barbic Skye, Brooks Emily, Lassak Natalia, Khaleghi Mo, Zenone Marco, Ow Nikki, Leon Adelena, Mathias Steve
Department of Occupational Science and Occupational Therapy, The University of British Columbia, 2211 Wesbrook Mall T325, Vancouver, BC, V6T 2B5, Canada.
Foundry, 915-1045 Howe Street, Vancouver, BC, V6Z 2A9, Canada.
J Patient Rep Outcomes. 2022 Sep 3;6(1):92. doi: 10.1186/s41687-022-00491-6.
In Canada, the prevalence of mental health challenges is highest in young people aged 12-24. Mental health challenges frequently cause marked functional impairment. Despite this, we are unaware of any existing conceptualization and/or measures of function that has been developed from the perspective of young people. The objective of this paper is to develop a conceptual and measurement model, including a preliminary set of items, for an outcome measure of function for young adults accessing mental health services.
We conducted this study in three phases. In phase 1, we conducted three focus groups to conceptualize function as a construct from the perspective of young adults. In phase 2, we co-designed a set of items with youth (n = 4) to capture the construct. In phase 3, we invited young people (n = 12) accessing mental health services to complete workbooks and participate in one of two focus groups to evaluate whether items were clear, captured function comprehensively, and were relevant. We transcribed and compiled all data to eliminate, refine and generate new items.
In phase 1, a conceptual model of function was developed with three main themes: basic needs, roles and responsibilities, and social connections. In phase 2, 97 candidate items were developed, and in phase 3, a candidate pool of 50 items resulted for psychometric testing.
This youth-centred conceptualization of function and preliminary item bank has the potential to advance person-centred care, outcomes, and experiences for youth seeking mental health services.
在加拿大，12至24岁的年轻人心理健康问题的患病率最高。心理健康问题经常导致明显的功能障碍。尽管如此，我们尚未发现任何从年轻人角度出发制定的现有功能概念化和/或测量方法。本文的目的是为接受心理健康服务的年轻人开发一个功能结果测量的概念和测量模型，包括一组初步项目。
我们分三个阶段进行了这项研究。在第一阶段，我们开展了三个焦点小组讨论，从年轻人的角度将功能概念化为一个结构。在第二阶段，我们与青少年（n = 4）共同设计了一组项目来捕捉该结构。在第三阶段，我们邀请接受心理健康服务的年轻人（n = 12）完成工作手册，并参加两个焦点小组讨论之一，以评估项目是否清晰、全面地涵盖了功能且相关。我们转录并整理了所有数据，以消除、完善并生成新的项目。
在第一阶段，开发了一个功能概念模型，包含三个主要主题：基本需求、角色与责任以及社会联系。在第二阶段，开发了97个候选项目，在第三阶段，形成了一个包含50个项目的候选库用于心理测量测试。
这种以青少年为中心的功能概念化和初步项目库有可能推进为寻求心理健康服务的青少年提供以患者为中心的护理、结果和体验。
