Centre for Person-Centred Care (GPCC, Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
School of Psychology, University of Plymouth, Plymouth, UK.
Scand J Caring Sci. 2022 Mar;36(1):235-244. doi: 10.1111/scs.12982. Epub 2021 May 4.
To facilitate change for person-centred care, there is a need to invest in measures to assess if and how healthcare systems are delivering care based on the principles of person-centred care. This paper describes the first phase in developing an item bank to measure patients' experiences of person-centred care.
The aim was to translate, culturally adapt and evaluate candidate items to measure person-centred care from the patient's perspective.
The Centre for person-centred care at Gothenburg university and the UK Person-centred and coordinated care model informed our conceptual framework. The initial pool of item candidates originated from a previous systematic review where 855 items were identified. In this study, a mixed method design was used involving persons with experience as patients, caregivers, healthcare professionals and researchers in person-centred care or questionnaire design (n = 84). The item analysis included two validation rounds using web questionnaires, a focus group and cognitive interviews.
From the initial pool, 155 items covering core domains and subdomains of person-centred and coordinated care were selected for translation and qualitative item analysis. After translation, 44 items were excluded (duplicates). After the first validation round, 21 items were rephrased and 35 were excluded (due to low ratings, lack of comprehensibility, were duplicates or too specifically phrased). To reflect the ethical basis of person-centred care, rewordings were also made to encompass the patient as an active partner in care and where communication and information goes two-ways and care is co-created. After the second round, 11 items were rephrased and 25 items were excluded (for being redundant/repetitive). Six new items were added (covering access to care, patient capabilities, mental well-being and identifying goals).
We have developed a first set of 57 items to proceed towards developing an item bank to measure the patient experiences of person-centred care.
为了促进以患者为中心的护理变革，需要投资开发衡量卫生系统是否以及如何基于以患者为中心的护理原则提供护理的措施。本文介绍了开发衡量患者以患者为中心的护理体验的项目库的第一阶段。
旨在翻译、文化调适和评估衡量以患者为中心的护理的候选项目，这些项目源自之前的系统评价，其中确定了 855 个项目。在这项研究中，使用了混合方法设计，涉及有患者、护理人员、医疗保健专业人员和以患者为中心的护理或问卷设计经验的人员（n=84）。项目分析包括两轮网络问卷验证、一个焦点小组和认知访谈。
从初始池中选择了 155 个涵盖以患者为中心和协调护理的核心领域和子领域的项目进行翻译和定性项目分析。翻译后，排除了 44 个项目（重复）。第一轮验证后，重新表述了 21 个项目，排除了 35 个项目（由于评分低、缺乏理解、重复或措辞过于具体）。为了反映以患者为中心的护理的伦理基础，还对措辞进行了修改，以包含患者作为护理的积极伙伴，以及沟通和信息双向进行，护理是共同创造的。第二轮后，重新表述了 11 个项目，排除了 25 个项目（冗余/重复）。增加了 6 个新项目（涵盖获得护理、患者能力、心理健康和确定目标）。
我们已经开发了第一组 57 个项目，以进一步开发衡量患者以患者为中心的护理体验的项目库。
