Fielding-Gebhardt Heather, Swinburne Romine Rebecca, Bredin-Oja Shelley, Brady Nancy, Warren Steven F
Schiefelbusch Institute for Life Span Studies, University of Kansas, Lawrence, KS, United States.
Department of Communication Sciences and Disorders, Minot State University, Minot, ND, United States.
Front Psychiatry. 2022 Aug 23;13:952118. doi: 10.3389/fpsyt.2022.952118. eCollection 2022.
Mothers of children with fragile X syndrome are at increased risk of experiencing anxiety and depression due to potential genetic risk and to stress associated with parenting a child with significant behavioral, emotional, and educational support needs. During the initial shutdown and subsequent restrictions of the COVID-19 pandemic, mothers of children with fragile X reported experiencing elevated levels of anxiety and depression relative to their usual levels of well-being. Many indicated that the negative consequences of exposure to COVID-19 and related stressors, as well as the impacts of the pandemic on their family, directly affected their anxiety and depression. Mothers reported on specific sources of distress as well as potential sources of resilience and positive adaptation that occurred during the first year of the COVID-19 pandemic.
患有脆性X综合征孩子的母亲，由于潜在的遗传风险以及养育一个有显著行为、情感和教育支持需求的孩子所带来的压力，面临焦虑和抑郁风险增加的情况。在新冠疫情最初的封锁及随后的限制措施期间，患有脆性X综合征孩子的母亲报告称，与她们平时的幸福水平相比，焦虑和抑郁程度有所升高。许多人表示，接触新冠病毒及相关压力源的负面后果，以及疫情对其家庭的影响，直接影响了她们的焦虑和抑郁状况。母亲们报告了在新冠疫情第一年中具体的困扰来源以及潜在的恢复力和积极适应的来源。
