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自闭症谱系障碍个体家庭在 COVID-19 危机期间的看法。

Perceptions of Families of Individuals with Autism Spectrum Disorder during the COVID-19 Crisis.

机构信息

Autism Alliance of Michigan, Bingham Farms, MI, 48025, USA.

Division of Epidemiology and Biostatistics, Western Michigan University Homer Stryker M.D. School of Medicine, 1000 Oakland Drive, Kalamazoo, MI, 49008, USA.

出版信息

J Autism Dev Disord. 2021 Aug;51(8):2920-2928. doi: 10.1007/s10803-020-04760-5. Epub 2020 Oct 22.

DOI:10.1007/s10803-020-04760-5
PMID:33090358
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7578441/
Abstract

Caring for an individual with autism spectrum disorder (ASD) in ideal circumstances can be stressful, and the Coronavirus disease (COVID-19) pandemic created a high degree of disruption to life and stress to families living with an individual with ASD. We conducted an online survey of families in Michigan that revealed higher levels of stress in caregivers of younger individuals with ASD and those with greater severity of ASD symptoms. Stress around therapeutic service disruption, finances, and illness predominated and greater stress was reported for caregivers of individuals receiving greater intensity of services pre-COVID-19. Respondents voiced concerns about receiving respite care during COVID-19, and those expressing interest in respite also reported greater symptom severity in the person with ASD.

摘要

照顾自闭症谱系障碍（ASD）个体在理想情况下可能会有压力，而冠状病毒病（COVID-19）大流行对生活造成了高度破坏，并给与 ASD 个体一起生活的家庭带来了压力。我们对密歇根州的家庭进行了在线调查，结果显示，自闭症程度较轻的 ASD 个体和自闭症症状较严重的个体的照顾者压力更大。治疗服务中断、经济和疾病方面的压力占主导地位，而 COVID-19 之前接受服务强度更高的个体的照顾者报告的压力更大。受访者对 COVID-19 期间获得暂息护理表示担忧，而对暂息护理感兴趣的人也报告说 ASD 患者的症状更严重。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/99129d10a201/10803_2020_4760_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/15c00c1858aa/10803_2020_4760_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/8432eca9b3c3/10803_2020_4760_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/99129d10a201/10803_2020_4760_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/15c00c1858aa/10803_2020_4760_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/8432eca9b3c3/10803_2020_4760_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b99a/7578441/99129d10a201/10803_2020_4760_Fig3_HTML.jpg

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J Infect. 2020 Jul;81(1):e98-e99. doi: 10.1016/j.jinf.2020.04.007. Epub 2020 Apr 17.
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