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测量残疾成年人参与的主观方面:标准化工具的涵盖范围、内容效度和内部结构的系统评价。

Measuring subjective aspects of participation in adults with disabilities: A systematic review of the coverage, content validity and internal structure of standardised instruments.

机构信息

Graduate Program in Rehabilitation Sciences, School of Physical Education, Physical Therapy and Occupational Therapy, 28114Universidade Federal de Minas Gerais (UFMG), Belo Horizonte, Minas Gerais, Brazil.

Physical Therapy Department and Graduate Program in Rehabilitation Sciences, School of Physical Education, Physical Therapy and Occupational Therapy, 28114Universidade Federal de Minas Gerais (UFMG), Belo Horizonte, Minas Gerais, Brazil.

出版信息

Clin Rehabil. 2023 Feb;37(2):177-198. doi: 10.1177/02692155221123545. Epub 2022 Sep 9.

DOI:10.1177/02692155221123545
PMID:36082959
Abstract

OBJECTIVE

To systematically review evidence on the coverage, content validity and internal structure of self-report measures capturing subjective aspects of participation for adults with disabilities.

DATA SOURCES

EMBASE, MEDLINE and reference lists were searched until July 10, 2022 for articles on measurement properties of instruments measuring participation as defined in the International Classification of Functioning, Disability and Health, from a subjective perspective.

METHOD

Each instrument was assessed for its coverage of subjective aspects of participation. The Consensus-based Standards for the Selection of Health Measurement Instruments were used to assess the quality of each study. Content validity and internal structure (structural validity, internal consistency and cross-cultural validity) were rated against published standards and qualified by the adapted Grading of Recommendations Assessment, Development and Evaluation.

RESULTS

Thirty-eight studies regarding 10 instruments were analysed. Most instruments mix activity and participation items. Only the Measure of Experiential Aspects of Participation (with high-quality evidence of sufficient structural validity and generally sufficient internal consistency), the Participation Enfranchisement and the Community Integration Measure showed adequate coverage. For all instruments, evidence of content validity is of low- to very low quality. There is high-quality evidence that the Participation Scale is not unidimensional.

CONCLUSION

In general, the coverage and the evidence for content validity and internal structure of measures capturing experiential aspects of participation are limited. The Measure of Experiential Aspects of Participation has the best level of evidence in support of its use. The score of the Participation Scale cannot be considered an adequate reflection of participation.

摘要

目的

系统回顾有关成人残疾主观参与方面的自我报告测量工具的涵盖范围、内容效度和内部结构的证据。

数据来源

截至 2022 年 7 月 10 日,通过 EMBASE、MEDLINE 和参考文献列表搜索了关于使用国际功能、残疾和健康分类主观视角测量参与度的工具的测量特性的文章。

方法

评估每个工具对主观参与方面的涵盖范围。使用基于共识的健康测量仪器选择标准来评估每项研究的质量。内容效度和内部结构(结构效度、内部一致性和跨文化效度)根据已发表的标准进行评估,并根据适应性推荐评估、制定和评估进行限定。

结果

分析了 10 种工具的 38 项研究。大多数工具混合了活动和参与项目。只有体验方面的参与测量(具有足够结构效度和一般足够内部一致性的高质量证据)、参与授权和社区融合测量显示出足够的涵盖范围。对于所有工具,内容效度的证据质量为低至非常低。有高质量的证据表明,参与量表不是单维的。

结论

总体而言,主观参与方面的测量工具的涵盖范围和内容效度及内部结构的证据有限。体验方面的参与测量具有最佳的证据支持其使用。参与量表的得分不能被认为是对参与的充分反映。

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