Moore Caitlyn M, Pan Cynthia X, Roseman Karin, Stephens Mary M, Bien-Aime Casey, Morgan Ann C, Ross Wendy, Castillo Matthew C, Palathra Brigit C, Jones Christopher A, Ailey Sarah, Tuffrey-Wijne Irene, Smeltzer Suzanne C, Tobias Jane
Jefferson College of Nursing, Thomas Jefferson University, Philadelphia, Pennsylvania, USA.
Inpatient Palliative Care and Hospice, Main Line Health, Radnor, Pennsylvania, USA.
J Palliat Med. 2022 Dec;25(12):1857-1864. doi: 10.1089/jpm.2022.0384. Epub 2022 Sep 9.
As many people with intellectual disabilities (ID) live longer, the need for access to quality palliative care (PC) rises. People with ID realize significant barriers and inequities in accessing health care and PC. The need for integrated disability and PC services with extensive collaboration is great. The following tips are for PC clinicians caring for people with ID, their families, caregivers, and the community. While patient-centered care is difficult to distill into "tips," this article, written by an interdisciplinary team of PC and ID specialists, offers resources and references to improve the care provided to people with ID and serious illnesses.
随着许多智障人士寿命延长,获得优质姑息治疗的需求也在增加。智障人士在获得医疗保健和姑息治疗方面面临重大障碍和不平等。对整合残疾与姑息治疗服务并进行广泛协作的需求很大。以下提示是为照顾智障人士、其家人、护理人员及社区的姑息治疗临床医生提供的。虽然以患者为中心的护理难以提炼成“提示”,但本文由姑息治疗和智障领域的跨学科团队撰写,提供了资源和参考文献,以改善为智障和重症患者提供的护理。