Harvard Medical School, Boston, Massachusetts, USA.
Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital/MassGeneral Brigham/Harvard Medical School, Boston, Massachusetts, USA.
J Palliat Med. 2024 Aug;27(8):1064-1073. doi: 10.1089/jpm.2023.0662. Epub 2024 Jan 17.
Palliative care (PC) clinicians are well poised to help people with disabilities (PWD) live well in the context of serious illness. PC prioritizes person-centered care with a focus on function, autonomy, and quality of life. This approach aligns with principles of high-quality care for PWD. An understanding of the unique experiences and needs of PWD can advance the delivery of comprehensive, equitable PC for this population. In this article, we provide 10 tips to help PC clinicians develop an informed disability lens in their approach to care.
姑息治疗(PC)临床医生非常适合在严重疾病的背景下帮助残疾(PWD)人士生活得更好。PC 优先考虑以人为本的护理,注重功能、自主性和生活质量。这种方法符合 PWD 高质量护理的原则。了解 PWD 的独特体验和需求可以促进为这一人群提供全面、公平的 PC。在本文中,我们提供了 10 条提示,帮助 PC 临床医生在护理方法中培养有见识的残疾视角。