Cleveland Clinic Lerner College of Medicine, Cleveland Clinic, Cleveland, OH, United States.
Medical Scientist Training Program, Case Western School of Medicine, Cleveland, OH, United States.
Front Public Health. 2022 Aug 24;10:887714. doi: 10.3389/fpubh.2022.887714. eCollection 2022.
Adults with intellectual or developmental disability (IDD) comprise 1-2% of the population worldwide. IDD is a significant risk factor for premature morbidity or mortality. This is likely due in part to preventable health conditions, which are modifiable with the intervention of direct care providers in areas including nutrition, promotion of an active lifestyle and effective identification of health or functional deterioration. Adults with IDD are also at increased risk for neglect or mistreatment, a finding that has been documented across multiple countries and in a variety of care settings. Contributing factors include resource availability, lack of person-centered care, management culture and care worker training. Practical and economical interventions may address the known disparities and challenges facing the large community of adults with IDD. To promote person-centered care, improve record-keeping/documentation, and aid in protecting the health and safety of this vulnerable population, we propose incorporation of a video into the evaluation of adults with IDD living outside the home.
全世界范围内，成年人智力或发育障碍（IDD）的发病率占 1-2%。ID 是导致早发性发病或死亡的一个重要风险因素。这在一定程度上可能是由于可预防的健康状况，通过直接护理人员在营养、促进积极生活方式和有效识别健康或功能恶化等方面的干预，这些健康状况是可以改变的。ID 患者也面临着被忽视或虐待的风险增加，这一发现已在多个国家和各种护理环境中得到证实。其促成因素包括资源的可获得性、缺乏以患者为中心的护理、管理文化和护理人员培训。实际且经济的干预措施可能有助于解决 ID 患者这一庞大群体所面临的已知差距和挑战。为了促进以人为本的护理、改善记录保存/文件记录，并有助于保护这一弱势群体的健康和安全，我们建议在评估居住在家庭以外的 ID 患者时纳入视频。
