Herasse Muriel, Romier Mélanie, Hentgen Véronique, Duquesne Agnès, Larbre Jean-Paul, Maillard Hélène, Pha Micheline, Pillet Pascal, Reumaux Héloïse, Truchetet Marie-Elise, Georgin-Lavialle Sophie, Belot Alexandre
Filière nationale des maladies auto-immunes et auto-inflammatoires rares (FAI²R), Hôpital Claude Huriez, CHU de Lille, Lille, France.
Le Pass'âge, Hôpital-Femme-Mère-Enfant, Hospices civils de Lyon, Bron, France.
Med Sci (Paris). 2022 Aug-Sep;38(8-9):686-692. doi: 10.1051/medsci/2022107. Epub 2022 Sep 12.
The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.
法国罕见自身免疫性和自身炎症性疾病网络中参与过渡性护理的委员会已经开发了相关工具，并发布了针对患有这些常出现病情发作的慢性疾病的青少年和青年在过渡期间护理的建议。由于面临的挑战是在成人阶段持续接受护理的依从性，年轻患者与其儿科医生以及随后的成年医生之间的治疗联盟尤为重要。因此，该工作组针对医生和年轻患者在医疗监督过渡期间如何看待他们之间的关系进行了一项调查。
