LSU Health Sciences Center School of Medicine, New Orleans, Louisiana, USA.
Department of Psychology, University of California, Los Angeles, Los Angeles, California, USA.
J Palliat Med. 2023 Mar;26(3):360-365. doi: 10.1089/jpm.2022.0250. Epub 2022 Sep 16.
Although palliative care programs are beneficial to patients and families, most of the public is unfamiliar with and underutilizes palliative services. TikTok, a fast-growing social media platform worldwide, allows users to share short live-recorded videos and could be used to educate the public about palliative care. This study characterized palliative care TikTok videos and determined characteristics associated with higher user engagement metrics (views, likes, comments, and shares). The investigators analyzed the content and engagement metrics of palliative care TikTok videos. Each video was coded for author type (health care professional, patient, caregiver, or other) and demographics, features, and themes. Negative binomial regression analyses identified whether author type and themes were associated with engagement statistics. After screening 510 videos, 146 met criteria for analysis. The most prominent author types were health care professionals (55.5%), followed by patients (32.9%) and caregivers (7.5%). Authors were often female (71.2%) and played music (59.5%) while talking (45.9%). Themes were describing personal experiences (47.3%), educating (39.7%), addressing misconceptions (16.4%), responding to questions and comments (14.4%), and raising awareness (11.0%). Caregivers' videos were most likely to be viewed ( = 0.003) and liked ( < 0.001), whereas health care professionals' videos were most frequently shared ( = 0.01). Engagement was highest among videos describing personal experiences (views: < 0.001, likes: = 0.002, shares: = 0.003) and educating (views: = 0.005, likes: = 0.002, comments: = 0.02, shares: < 0.001). TikTok provides an interactive platform for patients, professionals, and caregivers to share information and experiences about palliative care, making it potentially valuable for explaining palliative care to the public.
尽管姑息治疗计划对患者和家属有益，但大多数公众对姑息治疗服务并不熟悉，也没有充分利用。TikTok 是一个在全球范围内快速发展的社交媒体平台，允许用户分享短视频，因此可以用来向公众宣传姑息治疗知识。本研究对姑息治疗 TikTok 视频进行了特征描述，并确定了与更高用户参与度指标（浏览量、点赞量、评论量和分享量）相关的特征。研究人员分析了姑息治疗 TikTok 视频的内容和参与度指标。为每个视频编写了作者类型（医疗保健专业人员、患者、护理人员或其他）和人口统计学、功能和主题信息。使用负二项回归分析确定作者类型和主题是否与参与度统计数据相关。在筛选了 510 个视频后，有 146 个符合分析标准。最突出的作者类型是医疗保健专业人员（55.5%），其次是患者（32.9%）和护理人员（7.5%）。作者通常是女性（71.2%），在说话时会播放音乐（59.5%）。主题包括描述个人经历（47.3%）、教育（39.7%）、纠正误解（16.4%）、回答问题和评论（14.4%）以及提高认识（11.0%）。护理人员的视频最有可能被观看（ = 0.003）和点赞（ < 0.001），而医疗保健专业人员的视频最常被分享（ = 0.01）。描述个人经历的视频的参与度最高（浏览量： < 0.001，点赞量： = 0.002，分享量： = 0.003）和教育类视频（浏览量： = 0.005，点赞量： = 0.002，评论量： = 0.02，分享量： < 0.001）。TikTok 为患者、专业人员和护理人员提供了一个互动平台，用于分享有关姑息治疗的信息和经验，因此对于向公众解释姑息治疗知识具有潜在价值。
