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制定并测试一个综合理论模型,以预测痴呆患者家庭照顾者积极照顾方面的情况:研究方案。

Developing and testing of an integrative theoretical model to predict positive aspects of caregiving among family caregivers of persons with dementia: A study protocol.

机构信息

LKS Faculty of Medicine, The University of Hong Kong, Shatin, Hong Kong.

Department of Health and Physical Education, The Education University of Hong Kong, Hong Kong, Hong Kong.

出版信息

J Adv Nurs. 2021 Jan;77(1):401-410. doi: 10.1111/jan.14561. Epub 2020 Oct 17.

DOI:10.1111/jan.14561
PMID:33068058
Abstract

AIMS

The aim is to develop and test an integrative model based on the stress and coping paradigm and the existential paradigm, to explain positive aspects of caregiving among family caregivers of persons with dementia.

DESIGN

A mixed method research, comprises a longitudinal exploratory study and a descriptive qualitative study.

METHODS

A total of 370 family caregivers will be recruited from community elderly centres. Questionnaires on positive aspects of caregiving and its predictors (including active dementia management strategies, meaning-focused coping, and self-efficacy) and contextual factors (including social support, religiosity, continuous good dyadic relationship quality, and intrinsic motivation towards caregiving) will be administered. Positive aspects of caregiving will be reassessed six months later. Path analysis will be used to test the hypothesized model. A subsample of 30 family caregivers will be interviewed individually to explore how positive aspects of caregiving develop from the caregiving experience. Inductive thematic analysis will be used to for the qualitative data analysis. The funding was approved in January 2018.

DISCUSSION

Positive aspects of caregiving represents the extent to which the caregiving experience is seen as enriching an individual's life space and resulted in health protective effects. With the increasing evidence to indicate its associating factors, it is imperative to identify the theoretical model to comprehensively elucidate the process for its development.

IMPACT

Theoretically, this study will advance the knowledge of dementia caregiving by generating a comprehensive theory-driven predictive model to explain how positive aspects of caregiving is developed among the family caregivers. In terms of nursing practice, the findings can inform the development of intervention to improve positive aspects of caregiving and thereby acts as a catalyst to promote the paradigm shift from 'reducing limitations' to 'optimizing strengths' in family caregivers support services.

摘要

目的

旨在基于压力和应对范式以及存在主义范式,开发和检验一个综合模型,以解释痴呆患者家庭照顾者的积极照顾方面。

设计

混合方法研究,包括纵向探索性研究和描述性定性研究。

方法

将从社区老年人中心招募 370 名家庭照顾者。将对积极照顾及其预测因素(包括积极的痴呆症管理策略、以意义为中心的应对方式和自我效能感)和情境因素(包括社会支持、宗教信仰、持续良好的二元关系质量和对照顾的内在动机)进行问卷调查。六个月后将重新评估积极照顾方面。路径分析将用于检验假设模型。将对 30 名家庭照顾者进行个别访谈,以探讨积极照顾方面如何从照顾经验中发展。将使用归纳主题分析对定性数据分析。该研究于 2018 年 1 月获得批准。

讨论

积极的照顾方面代表着照顾经历被视为丰富个人生活空间并产生健康保护作用的程度。随着越来越多的证据表明其相关因素,确定理论模型来全面阐明其发展过程至关重要。

影响

从理论上讲,这项研究将通过生成一个全面的理论驱动预测模型,来解释家庭照顾者如何发展积极的照顾方面,从而推进痴呆症照顾的知识。在护理实践方面,研究结果可以为改善积极照顾方面的干预措施提供信息,从而促进从家庭照顾者支持服务中的“减少限制”到“优化优势”的范式转变。

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The positive aspects of caregiving in dementia: A scoping review and bibliometric analysis.痴呆症患者护理的积极方面:范围综述和文献计量分析。
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