Minyo Morgan J, Powers Sara M, Bass David M, Cannon Rachel M, Maslow Katie, Fete Zoe F, Huth Megan K
Benjamin Rose Benjamin Rose Institute on Aging Cleveland Ohio USA.
Alzheimers Dement (N Y). 2025 Jun 11;11(2):e70092. doi: 10.1002/trc2.70092. eCollection 2025 Apr-Jun.
A substantial number of evidence-based dementia caregiving support programs positively impact family and friend caregivers. Researchers and service organizations have successfully translated and delivered a subset of these programs to caregivers and are included in (BPC). This investigation examined the programmatic caregiver research outcomes reported in peer-reviewed articles of BPC programs to understand how programs impact caregivers in the community and identify underrepresented outcomes.
Peer-reviewed, published research articles that (1) reported at least one dementia caregiver outcome, and (2) used a controlled trial or pre/posttest study design were abstracted from the BPC database. Across 45 evidence-based programs in BPC, 128 articles met inclusion criteria for data coding and descriptive analysis. Research outcomes (e.g., stress, depressive symptoms), efficacy findings (e.g., beneficial, no effect), and the type of study design used (e.g., pre/posttest, treatment/control) were coded from each article.
Twelve programmatic outcomes were identified focusing on and . outcomes were frequently assessed by BPC programs, including symptoms of depression, reported in 81 (63.3%) articles, and care-related stress, strain, and/or burden, reported in 75 (58.6%) articles. By comparison, outcomes were infrequently measured including quantity of family/friend support, reported in 17 (13.3%) articles, and quantity of community service use, reported in 13 (10.2%) articles. High percentages of beneficial findings were reported for both and outcomes. Articles reported beneficial findings using pre/posttest and treatment/control group designs similarly across caregiver outcomes.
The majority of BPC programs positively impact caregiver well-being outcomes but limited attention is given to other person-centered and strength-based research outcomes including supports for caregivers, unmet needs, and positive aspects of caregiving. Additional research is needed by both established and new non-pharmacological caregiving interventions to target and evaluate the impact of these underrepresented outcomes.
Best Programs for Caregiving is an online database of dementia caregiving programs.BPC programs mainly target deficit-focused, medical-based, well-being outcomes.Few BPC programs target positive aspects of caregiving and service use outcomes.More research is needed to evaluate underrepresented caregiver outcomes.
大量基于证据的痴呆症护理支持项目对家庭和朋友护理者产生了积极影响。研究人员和服务组织已成功将其中一部分项目转化并提供给护理者，这些项目被纳入了《最佳护理项目》（BPC）。本调查研究了BPC项目同行评审文章中报告的项目护理者研究成果，以了解这些项目如何影响社区中的护理者，并确定未得到充分体现的成果。
从BPC数据库中提取同行评审的已发表研究文章，这些文章（1）报告了至少一项痴呆症护理者成果，（2）采用了对照试验或前后测试研究设计。在BPC的45个基于证据的项目中，有128篇文章符合数据编码和描述性分析的纳入标准。从每篇文章中对研究成果（如压力、抑郁症状）、疗效结果（如有益、无效果）以及所使用的研究设计类型（如前后测试、治疗/对照）进行编码。
确定了12项项目成果，重点关注[此处原文缺失具体内容]。BPC项目经常评估的成果包括抑郁症状，81篇（63.3%）文章中有报告；以及与护理相关的压力、紧张和/或负担，75篇（58.6%）文章中有报告。相比之下，很少测量的成果包括家庭/朋友支持的数量，17篇（13.3%）文章中有报告；以及社区服务使用的数量，13篇（10.2%）文章中有报告。对于[此处原文缺失具体内容]和[此处原文缺失具体内容]成果，都报告了很高比例的有益结果。文章在护理者成果方面，使用前后测试和治疗/对照组设计报告有益结果的情况类似。
大多数BPC项目对护理者的幸福成果产生了积极影响，但对其他以个人为中心和基于优势的研究成果关注有限，包括对护理者的支持、未满足的需求以及护理的积极方面。既有和新的非药物护理干预措施都需要开展更多研究，以针对并评估这些未得到充分体现的成果的影响。
《最佳护理项目》是一个痴呆症护理项目的在线数据库。BPC项目主要针对以缺陷为重点、基于医疗的幸福成果。很少有BPC项目针对护理的积极方面和服务使用成果。需要开展更多研究来评估未得到充分体现的护理者成果。
