一项评估将公众和患者参与纳入中风护理结构化博士项目的影响的方案。
A protocol to evaluate the impact of embedding Public and Patient Involvement in a structured PhD program for stroke care.
作者信息
Horgan Frances, Lennon Olive, Hickey Anne, Sorensen Jan, Kroll Thilo, McCartan Deirdre, Hall Patricia, O'Callaghan Geraldine, Fitzgerald Clare, Hickey Julianne, Fahy Martin, Osborne Philip, Scullion Mary, Ní Bhroin Clíodhna, Williams David J
机构信息
Improving Pathways for Acute Stroke and Rehabilitation (iPASTAR) Collaborative Doctoral Award Programme, Division of Population Health Sciences, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, Ireland.
School of Physiotherapy, Royal College of Surgeons in Ireland (RCSI) University of Medicine and Health Sciences, Dublin, Ireland.
出版信息
Front Rehabil Sci. 2022 Jul 22;3:877598. doi: 10.3389/fresc.2022.877598. eCollection 2022.
BACKGROUND
Embedding Public and Patient Involvement (PPI) in postgraduate research has been recognized as an important component of post-graduate training, providing research scholars with an awareness and a skillset in an area which prepares them for future roles as healthcare researchers. Improving Pathways for Acute STroke And Rehabilitation (iPASTAR) is a structured PhD training program [Collaborative Doctoral Award (CDA)] which aims to design a person-centered stroke pathway throughout the trajectory of stroke care, to optimize post-stroke health and wellbeing. PPI is embedded at all stages.
PURPOSE
The iPASTAR research programme was strongly informed by a round-table PPI consultation process with individuals who experienced stroke and who provided broad representation across ages, gender, geographical locations (urban and rural) and the PhD themed areas of acute care, early supported discharge and lifestyle-based interventions after stroke. Four PhD scholars taking part in the CDA-iPASTAR now work collaboratively with four stroke champions, supported by a wider PPI advisory panel.
METHODS
This study will evaluate the process and impact of embedding PPI during a PhD program. We will conduct a longitudinal mixed-methods evaluation, conducting focus groups at 24, 36, and 48 months to explore the experiences of the key stakeholders involved. The participants will include PhD scholars, PPI partners (PPI Advisory Group and PPI Champions), PhD supervisors and a PPI manager. An independent researcher will conduct the evaluation. We will include focus groups, individual interviews and participant reflections. Qualitative data will be analyzed using thematic and content analysis, quantitative data will be analyzed using descriptive statistics.
DISCUSSION
PPI and patient voice initiatives bring together researchers, family, and people with health care issues into meaningful dialogue and allow the development of a patient-voice learning network. Embedding PPI training within a PhD program can build meaningful capacity in PPI partnerships in stroke research.
背景
将公众和患者参与（PPI）纳入研究生研究已被视为研究生培训的重要组成部分，为研究学者提供了一个领域的意识和技能集，使他们为未来成为医疗保健研究人员做好准备。改善急性中风及康复途径（iPASTAR）是一个结构化的博士培训项目[合作博士奖（CDA）]，旨在设计一条贯穿中风护理轨迹的以人为本的中风途径，以优化中风后的健康和福祉。PPI贯穿于所有阶段。
目的
iPASTAR研究项目在很大程度上受到了与中风患者进行的圆桌PPI咨询过程的影响，这些患者在年龄、性别、地理位置（城市和农村）以及中风后的急性护理、早期支持出院和基于生活方式的干预等博士主题领域具有广泛代表性。四名参与CDA-iPASTAR的博士学者现在在一个更广泛的PPI咨询小组的支持下，与四名中风倡导者合作。
方法
本研究将评估在博士项目中纳入PPI的过程和影响。我们将进行一项纵向混合方法评估，在24个月、36个月和48个月时进行焦点小组讨论，以探讨相关关键利益攸关方的经历。参与者将包括博士学者、PPI合作伙伴（PPI咨询小组和PPI倡导者）、博士导师和一名PPI经理。一名独立研究人员将进行评估。我们将纳入焦点小组讨论、个人访谈和参与者反思。定性数据将使用主题和内容分析进行分析，定量数据将使用描述性统计进行分析。
讨论
PPI和患者声音倡议将研究人员、家庭和有医疗保健问题的人聚集在一起进行有意义的对话，并促进患者声音学习网络的发展。在博士项目中纳入PPI培训可以在中风研究的PPI伙伴关系中建立有意义的能力。
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