Daniel Mont (
Jennifer Madans, Center for Inclusive Policy.
Health Aff (Millwood). 2022 Oct;41(10):1442-1448. doi: 10.1377/hlthaff.2022.00479.
Disability is complex and multifaceted, complicating governments' efforts to collect the high-quality, comprehensive data necessary for developing, implementing, and monitoring policies. Yet data are needed to obtain information on functioning in the population, to identify the population with disabilities, and to disaggregate indicators of well-being by disability to determine whether people with disabilities are participating in society to the same extent as those without disabilities. In this article we discuss the need for data harmonization to improve disability research and policy. We describe standard question sets on disability developed for inclusion in surveys and administrative systems, as well as the need for coordination of both statistical and administrative data systems. Until disability data become more harmonized, it will not be possible to support the development of comprehensive, evidence-based policies and programs to address the needs of the population with disabilities.
残疾是一个复杂且多方面的问题，这使得政府难以收集到高质量、全面的数据，而这些数据对于制定、实施和监测政策是必要的。然而，需要数据来获取有关人群功能的信息，以确定残疾人群，并按残疾情况对福祉指标进行分类，以确定残疾人和非残疾人是否以同样的程度参与社会。在本文中，我们讨论了数据协调统一以改进残疾研究和政策的必要性。我们描述了为纳入调查和行政系统而制定的残疾标准问题集，以及协调统计和行政数据系统的必要性。在残疾数据变得更加协调统一之前，不可能支持制定全面、基于证据的政策和方案，以满足残疾人群的需求。
