• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Knowledge and perception of inborn errors of metabolism (IEMs) among healthcare students at a selected public university in Klang Valley, Malaysia.马来西亚巴生谷一所选定公立大学的医学生对先天性代谢缺陷(IEMs)的认知与了解。
Intractable Rare Dis Res. 2022 Aug;11(3):125-132. doi: 10.5582/irdr.2022.01062.
2
Spectrum of inherited metabolic disorders in Malaysia.马来西亚遗传性代谢紊乱的范围。
Ann Acad Med Singap. 2008 Dec;37(12 Suppl):66-5.
3
Osteoporosis Knowledge among Future Healthcare Practitioners: Findings from a Malaysian Public University.未来医疗从业者的骨质疏松症知识:来自马来西亚一所公立大学的研究结果
J Pharm Bioallied Sci. 2017 Apr-Jun;9(2):115-120. doi: 10.4103/jpbs.JPBS_336_16.
4
Knowledge and perceptions toward cardiology pharmacy education and training: Malaysian pharmacy students' perspectives.对心脏病学药学教育与培训的认识和看法:马来西亚药学专业学生的观点
Curr Pharm Teach Learn. 2018 Apr;10(4):453-462. doi: 10.1016/j.cptl.2017.12.019. Epub 2018 Jan 11.
5
Knowledge and awareness level of healthcare professional candidate students on inherited metabolic diseases: a cross-sectional study.医护专业候选学生对遗传性代谢疾病的知识和认知水平:一项横断面研究。
BMC Med Educ. 2023 Aug 9;23(1):562. doi: 10.1186/s12909-023-04548-y.
6
The impact of disease severity on the psychological well-being of youth affected by an inborn error of metabolism and their families: A one-year longitudinal study.疾病严重程度对受先天性代谢缺陷影响的青少年及其家庭心理健康的影响:一项为期一年的纵向研究。
Mol Genet Metab Rep. 2021 Aug 31;29:100795. doi: 10.1016/j.ymgmr.2021.100795. eCollection 2021 Dec.
7
The role of the Human Metabolome Database in inborn errors of metabolism.人代谢组数据库在先天性代谢缺陷中的作用。
J Inherit Metab Dis. 2018 May;41(3):329-336. doi: 10.1007/s10545-018-0137-8. Epub 2018 Apr 16.
8
Knowledge, Attitude, and Practice about Mental Health Challenges among Healthcare Students of a Private University.一所私立大学医学生对心理健康挑战的知识、态度和实践
J Pharm Bioallied Sci. 2021 Jan-Mar;13(1):136-142. doi: 10.4103/jpbs.JPBS_297_20. Epub 2020 Oct 15.
9
A pragmatic approach to the diagnosis of inborn errors of metabolism in developing countries.发展中国家先天性代谢缺陷诊断的实用方法。
Afr J Lab Med. 2023 May 30;12(1):1946. doi: 10.4102/ajlm.v12i1.1946. eCollection 2023.
10
Awareness and knowledge of epilepsy among students in a Malaysian university.马来西亚一所大学学生对癫痫的认知与了解
Seizure. 2005 Dec;14(8):593-6. doi: 10.1016/j.seizure.2005.09.005. Epub 2005 Oct 24.

引用本文的文献

1
Current Status of Newborn Bloodspot Screening Worldwide 2024: A Comprehensive Review of Recent Activities (2020-2023).《2024年全球新生儿血斑筛查现状:2020 - 2023年近期活动综合回顾》
Int J Neonatal Screen. 2024 May 23;10(2):38. doi: 10.3390/ijns10020038.
2
Knowledge and awareness level of healthcare professional candidate students on inherited metabolic diseases: a cross-sectional study.医护专业候选学生对遗传性代谢疾病的知识和认知水平:一项横断面研究。
BMC Med Educ. 2023 Aug 9;23(1):562. doi: 10.1186/s12909-023-04548-y.

本文引用的文献

1
A holistic approach to the patients/ Families with inborn errors of metabolism.对先天性代谢缺陷患者/家庭采取整体方法。
J Mother Child. 2020 Oct 2;24(2):65-72. doi: 10.34763/jmotherandchild.20202402si.2004.000010.
2
Needs assessment study of rare diseases education for nurses and nursing students in Poland.波兰护士和护理学生罕见病教育需求评估研究。
Orphanet J Rare Dis. 2020 Jun 29;15(1):167. doi: 10.1186/s13023-020-01432-6.
3
Rare disease in Malaysia: Challenges and solutions.马来西亚罕见病:挑战与解决方案。
PLoS One. 2020 Apr 2;15(4):e0230850. doi: 10.1371/journal.pone.0230850. eCollection 2020.
4
Oral health status of children with phenylketonuria.苯丙酮尿症患儿的口腔健康状况
J Pediatr Endocrinol Metab. 2020 Mar 26;33(3):361-365. doi: 10.1515/jpem-2019-0439.
5
Medical students' knowledge and opinions about rare diseases: A case study from Poland.医学生对罕见病的知识与看法:来自波兰的一个案例研究。
Intractable Rare Dis Res. 2019 Nov;8(4):252-259. doi: 10.5582/irdr.2019.01099.
6
Laboratory diagnostic approaches in metabolic disorders.代谢紊乱的实验室诊断方法。
Ann Transl Med. 2018 Dec;6(24):470. doi: 10.21037/atm.2018.11.05.
7
Common metabolic disorder (inborn errors of metabolism) concerns in primary care practice.常见的代谢紊乱(先天性代谢缺陷)在基层医疗实践中备受关注。
Ann Transl Med. 2018 Dec;6(24):469. doi: 10.21037/atm.2018.12.34.
8
An Introduction to Pharmacotherapy for Inborn Errors of Metabolism.先天性代谢缺陷的药物治疗导论
J Pediatr Pharmacol Ther. 2018 Nov-Dec;23(6):432-446. doi: 10.5863/1551-6776-23.6.432.
9
Nutritional management of phenylalanine hydroxylase (PAH) deficiency in pediatric patients in Canada: a survey of dietitians' current practices.加拿大儿科苯丙氨酸羟化酶(PAH)缺乏症患者的营养管理:营养师当前实践情况调查。
Orphanet J Rare Dis. 2019 Jan 8;14(1):7. doi: 10.1186/s13023-018-0978-0.
10
Global birth prevalence and mortality from inborn errors of metabolism: a systematic analysis of the evidence.全球先天性代谢缺陷的出生率和死亡率:系统分析证据。
J Glob Health. 2018 Dec;8(2):021102. doi: 10.7189/jogh.08.021102.

马来西亚巴生谷一所选定公立大学的医学生对先天性代谢缺陷(IEMs)的认知与了解。

Knowledge and perception of inborn errors of metabolism (IEMs) among healthcare students at a selected public university in Klang Valley, Malaysia.

作者信息

Liew Shi Hui, Lim Jing Ying, Yahya Hanis Mastura, Rajikan Roslee

机构信息

Nutritional Science Program, Faculty of Health Science, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.

Dietetics Program, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.

出版信息

Intractable Rare Dis Res. 2022 Aug;11(3):125-132. doi: 10.5582/irdr.2022.01062.

DOI:10.5582/irdr.2022.01062
PMID:36200028
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9437999/
Abstract

Healthcare providers play an important role in improving the health of Inborn Error of Metabolism (IEM) patients. However, IEM knowledge level among local healthcare students has yet to be determined. Thus, the aim of this study is to assess the knowledge and perception of IEM among local healthcare students. An online self-administered questionnaire was distributed to 378 students across the Faculty of Health Science, Pharmacy and Dentistry from a selected public university in , Malaysia. For knowledge, a score of 1 is assigned to each correct answer with a maximum total score of 14. Likert scale was used to determine their perception of IEM. The total mean score of IEM knowledge among healthcare students is 5.8. There was no significant difference of mean score of IEM knowledge among the students from the Faculty of Health Science (6.1 ± 2.7), Pharmacy (5.5 ± 2.6) and Dentistry (5.8 ± 2.8). However, the score of knowledge is observed to be significantly different by ethnicity, religion and family history of IEM ( < 0.05). Furthermore, students with experience of meeting an IEM patient and attending IEM classes scored higher than those with no experience ( < 0.05). Most of the healthcare students (89.5%) perceived their knowledge to be insufficient and very poor. Majority of the students from faculty of pharmacy (70.8%) agreed that the IEM course should be mandatory compared to health sciences and dentistry ( < 0.05). This study identified an overall inadequacy of knowledge of IEM among healthcare students. There is a pressing need to improve the IEM-related knowledge and awareness of Malaysian healthcare students. This can be accomplished by incorporating online classes that emphasizes the treatment and management of IEMs in the university curriculum.

摘要

医疗保健提供者在改善先天性代谢缺陷(IEM)患者的健康状况方面发挥着重要作用。然而,当地医学生对IEM的知识水平尚未确定。因此,本研究的目的是评估当地医学生对IEM的知识和认知。向马来西亚一所选定公立大学健康科学、药学和牙医学系的378名学生发放了一份在线自填问卷。对于知识部分,每个正确答案得1分,最高总分14分。采用李克特量表来确定他们对IEM的认知。医学生中IEM知识的总平均分为5.8分。健康科学系(6.1±2.7)、药学系(5.5±2.6)和牙医学系(5.8±2.8)的学生在IEM知识平均得分上没有显著差异。然而,观察到IEM知识得分在种族、宗教和IEM家族史方面存在显著差异(P<0.05)。此外,有接触IEM患者经历和参加过IEM课程的学生得分高于没有这些经历的学生(P<0.05)。大多数医学生(89.5%)认为自己的知识不足且非常匮乏。与健康科学系和牙医学系相比,药学系的大多数学生(70.8%)同意IEM课程应该是必修课(P<0.05)。本研究发现医学生对IEM的知识总体不足。迫切需要提高马来西亚医学生与IEM相关的知识和意识。这可以通过在大学课程中纳入强调IEM治疗和管理的在线课程来实现。