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自闭症儿童行为睡眠干预措施的可接受性:对《酣然入梦》的定性评估

Acceptability of a behavioural sleep intervention for autistic children: A qualitative evaluation of Sleeping Sound.

机构信息

School of Psychology, Faculty of Health, Deakin University, 1 Gheringhap Street, Geelong, Victoria, 3220, Australia.

Krongold Clinic, School of Educational Psychology and Counselling, Faculty of Education, Monash University, 19 Ancora Imparo Way, Clayton, Victoria, 3800, Australia.

出版信息

Sleep Med. 2022 Dec;100:378-389. doi: 10.1016/j.sleep.2022.09.010. Epub 2022 Sep 20.

Abstract

OBJECTIVE

The aim of the current study was to evaluate parental perceptions of the acceptability of a brief behavioural sleep intervention for autistic children (aged 5-13 years) using the Theoretical Framework of Acceptability (TFA).

METHODS

Qualitative data were collected during a large randomised controlled trial evaluating the efficacy of the Sleeping Sound intervention: 123 families were randomised to the intervention group, of which 115 (93%) completed at least one intervention session and 82 (67%) provided qualitative evaluation data in the 3-month follow-up survey. Consultation records from intervention sessions and parent surveys were qualitatively analysed post hoc using a hybrid approach to thematic analysis.

RESULTS

Findings were categorised under the seven themes of the TFA (affective attitude, burden, ethicality, intervention coherence, opportunity costs, perceived effectiveness, self-efficacy) in addition to three themes that were defined following inductive and deductive coding (barriers to implementation, facilitators to implementation, suggestions for improvement). Participants spoke positively about their experience participating in the intervention and perceived the intervention to be appropriate and effective. Most parents (95.5%) reported that they would recommend the Sleeping Sound intervention to other families of autistic children. Barriers to implementation included child and parent anxiety, child health problems, parental preferences, family circumstances, and other (e.g., school holidays). Facilitators to implementation included family support and consistency with strategies.

CONCLUSIONS

The Sleeping Sound intervention was considered acceptable to parents of autistic children as evidenced by largely positive feedback regarding their experience. The results highlighted areas for improvement which can be used to inform future iterations of the intervention.

摘要

目的

本研究旨在使用可接受性理论框架(TFA)评估父母对针对自闭症儿童(5-13 岁)的简短行为睡眠干预措施的可接受性的看法。

方法

在一项评估睡眠干预措施疗效的大型随机对照试验中收集定性数据:123 个家庭被随机分配到干预组,其中 115 个(93%)完成了至少一次干预,82 个(67%)在 3 个月随访调查中提供了定性评估数据。干预环节的咨询记录和家长调查在事后使用主题分析的混合方法进行了定性分析。

结果

除了根据归纳和演绎编码定义的三个主题(实施障碍、实施促进因素、改进建议)之外,研究结果还被归类为 TFA 的七个主题(情感态度、负担、伦理性、干预一致性、机会成本、感知效果、自我效能)。参与者对参与干预的体验给予了积极评价,并认为干预措施合适且有效。大多数家长(95.5%)表示会向其他自闭症儿童的家庭推荐睡眠干预措施。实施障碍包括儿童和家长的焦虑、儿童健康问题、父母偏好、家庭情况和其他因素(如学校假期)。实施促进因素包括家庭支持和策略的一致性。

结论

睡眠干预措施被自闭症儿童的父母认为是可接受的,这从他们对干预体验的积极反馈中可以明显看出。研究结果突出了需要改进的领域,可用于为干预措施的未来迭代提供信息。

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