The Florence Project, School of Information Technology and Electrical Engineering, The University of Queensland, St Lucia, Queensland, Australia.
Aust Occup Ther J. 2022 Dec;69(6):723-741. doi: 10.1111/1440-1630.12843. Epub 2022 Oct 6.
Occupational therapists may recommend and support technology use for facilitating independence, safety, wellbeing, and participation. There are high expectations for technology for people living with dementia. However, there is recognition that technologies will need to improve to deliver these expected benefits. People living with dementia have historically been excluded from direct involvement in research and design. A program of participatory research was undertaken to codesign technologies and technology research with people living with dementia and care partners. This work aims to capture the requirements, actions, and barriers experienced in forming these partnerships in technology research and design.
A shared metareflection of experiences was conducted by members (5) of the research teams involved in three participatory research and technology design studies. The team comprising living experience experts, an occupational therapist, and interaction designer reflected on their experiences and derived recommendations. Key considerations for effective partnerships were drawn inductively by the authors from study experiences, materials, and reflexive discussion.
Six core areas were identified. These were four action areas-(1) Agree on the value; (2) The time to start partnering is now; (3) Ask not assume; and (4) Push back on 'we always have'-(5) barriers and tensions, and (6) unexpected benefits. The reflections indicated that genuine partnerships and engagements were possible with living experience experts in research and design teams. These required resourcing and focussed actions to promote partnership. Despite some structural changes that encourage partnering, there are considerable barriers to this engagement; however, benefits beyond the expected ones can be realised.
Genuine partnerships in technology research and design with living experience experts are possible and lead to benefits for the team, research outcomes, and technologies. Recommended actions could support expansion of effective partnerships with people living with dementia and care partners as well as other partnerships in research.
职业治疗师可能会推荐并支持技术的使用，以促进独立性、安全性、幸福感和参与感。对于患有痴呆症的人来说，技术的应用寄予了很高的期望。然而，人们认识到技术需要改进，才能实现这些预期的效益。患有痴呆症的人在历史上一直被排除在直接参与研究和设计之外。我们开展了一项参与式研究计划，与患有痴呆症的患者及其护理伙伴共同设计技术和技术研究。这项工作旨在了解在技术研究和设计中形成这些伙伴关系的要求、行动和障碍。
参与三项参与式研究和技术设计研究的研究团队的五名成员（5）共同进行了一次共享元反思。该团队由生活经验专家、一名职业治疗师和交互设计师组成，他们对自己的经验进行了反思，并提出了建议。作者从研究经验、材料和反思性讨论中归纳出有效伙伴关系的关键考虑因素。
确定了六个核心领域。这些领域包括四个行动领域——（1）就价值达成一致；（2）现在就开始建立伙伴关系；（3）不要想当然地提问；（4）对“我们总是这样”提出质疑；（5）障碍和紧张局势；（6）意外的好处。反思表明，与研究和设计团队中的生活经验专家建立真正的伙伴关系是可能的，这需要资源和有针对性的行动来促进伙伴关系。尽管有一些鼓励合作的结构性变化，但这种合作仍存在相当大的障碍，但也可以实现超出预期的好处。
与生活经验专家在技术研究和设计方面建立真正的伙伴关系是可能的，并能为团队、研究成果和技术带来好处。建议的行动可以支持与患有痴呆症的患者及其护理伙伴以及研究中的其他伙伴关系的有效伙伴关系的扩大。
