Centre for Research on Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK.
School of Health Sciences, University of East Anglia, Queen's Building, Norwich, NR4 7TJ, UK.
BMC Geriatr. 2021 Feb 15;21(1):121. doi: 10.1186/s12877-020-01896-y.
BACKGROUND: Policy makers and care providers see assistive technology and telecare as potential products to support people with dementia to live independently in their homes and communities. Previous research rarely examined how people with dementia and their caregivers actually use such technology. The study examined how and why people living with dementia and their caregivers used assistive technology and telecare in their own homes. METHODS: This study used an ethnographic design embedded within the NIHR-funded Assistive Technology and Telecare to maintain Independent Living At home for people with dementia (ATTILA) randomised controlled trial. We collected 208 h of observational data on situated practices of ten people with dementia and their ten caregivers. We used this data to construct extended cases to explain how technologies supported people with dementia in home and community settings. RESULTS: We identified three themes: placing technology in care, which illustrates how people with dementia and caregivers 'fit' technology into their homes and routines; replacing care with technology, which shows how caregivers replaced normal care practices with ones mediated through technologies; and technology displacing care and everyday life, which highlights how technologies disrupted the everyday lives of people with dementia. DISCUSSION: This study exemplifies unintended and unanticipated consequences for assistive technology and telecare uptake in 'real world' community-based dementia care. It underlines the need to identify and map the context of technological provision over time within the changing lives of people with dementia and their caregivers.
背景:政策制定者和护理人员认为辅助技术和远程护理是潜在的产品,可以支持痴呆症患者在自己的家中和社区中独立生活。以前的研究很少检查痴呆症患者和他们的护理人员实际上如何使用这种技术。本研究考察了痴呆症患者及其护理人员如何以及为何在家中使用辅助技术和远程护理。
方法:本研究采用了在英国国家卫生研究院(NIHR)资助的辅助技术和远程护理以维持痴呆症患者在家中独立生活(ATTILA)随机对照试验中嵌入的民族志设计。我们收集了 10 名痴呆症患者及其 10 名护理人员的 208 小时的观察性数据,用于构建扩展案例,以解释技术如何在家庭和社区环境中支持痴呆症患者。
结果:我们确定了三个主题:将技术融入护理中,说明了痴呆症患者和护理人员如何将技术“融入”他们的家庭和日常生活;用技术替代护理,展示了护理人员如何通过技术替代正常的护理实践;以及技术取代护理和日常生活,强调了技术如何扰乱痴呆症患者的日常生活。
讨论:本研究例证了辅助技术和远程护理在“真实世界”社区为基础的痴呆症护理中采用的意外和意料之外的后果。它强调了需要随着痴呆症患者及其护理人员生活的变化,及时确定和绘制技术提供的背景。
Health Technol Assess. 2021-3
Dementia (London). 2014-5-5
Disabil Rehabil Assist Technol. 2024-4
JMIR Ment Health. 2025-7-9
JMIR Rehabil Assist Technol. 2024-12-23
Nat Rev Neurol. 2019-6
Arch Clin Neuropsychol. 2016-9
Gerontologist. 2015-10