英国痴呆症患者家庭照料者中的污名化现象。
Stigma among UK family carers of people living with dementia.
作者信息
Bhatt Jem, Scior Katrina, Stoner Charlotte R, Moniz-Cook Esme, Charlesworth Georgina
机构信息
Research Department of Clinical, Educational and Health Psychology, University College London, UK.
Centre for Chronic Illness and Ageing, School of Human Sciences, University of Greenwich, UK.
出版信息
BJPsych Open. 2022 Oct 7;8(6):e179. doi: 10.1192/bjo.2022.585.
BACKGROUND
Models of caregiving seldom include the role of stigma when understanding the experiences of carers of people living with dementia.
AIMS
To investigate the validity of the Family Stigma Instrument (FAMSI), and use it to explore the extent to which experiences of stigma are endorsed in family carers of people living with dementia.
METHOD
The FAMSI was tested with 70 carers of people living with dementia. They also completed a measure of self-esteem.
RESULTS
The FAMSI demonstrated some good preliminary psychometric properties. Carers endorsed stigma by association more so than affiliate stigma constructs, suggesting that carers were aware that others viewed or treated them in a stigmatising fashion but did not endorse internalised consequences of this as much (e.g. behavioural or affective affiliate stigma).
CONCLUSIONS
The FAMSI offers new avenues for understanding the contribution of stigma to caregiver burden in dementia. It also captures the positive aspects of caregiving, which may mitigate internalised stigma in family carers, and has good potential for evaluating stigma-neutralising interventions in dementia care.
背景
在理解痴呆症患者照料者的经历时，照护模式很少考虑到耻辱感的作用。
目的
调查家庭耻辱感量表（FAMSI）的有效性，并使用该量表探讨痴呆症患者家庭照料者认可耻辱感经历的程度。
方法
对70名痴呆症患者的照料者进行了FAMSI测试。他们还完成了一项自尊测量。
结果
FAMSI显示出一些良好的初步心理测量特性。与附属耻辱感结构相比，照料者更认可关联耻辱感，这表明照料者意识到其他人以耻辱的方式看待或对待他们，但对这种情况的内化后果（如行为或情感附属耻辱感）的认可程度较低。
结论
FAMSI为理解耻辱感对痴呆症照料者负担的影响提供了新途径。它还捕捉到了照护的积极方面，这可能减轻家庭照料者的内化耻辱感，并且在评估痴呆症护理中消除耻辱感的干预措施方面具有很大潜力。
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