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成人子女照顾中国癌症患者的照护经验的定性元分析:对多学科医疗保健团队的启示。

A qualitative meta-synthesis of the caregiving experiences of adult children providing care for cancer patients in China: Implications for multidisciplinary healthcare teams.

机构信息

Research Institute of Social Development, Southwestern University of Finance and Economics, Chengdu, China.

Department of Sociology, Nanjing University, Nanjing, China.

出版信息

Health Soc Care Community. 2022 Nov;30(6):e3829-e3842. doi: 10.1111/hsc.14073. Epub 2022 Oct 19.

Abstract

Qualitative meta-synthesis is a coherent approach to answering an overarching research question by synthesising past qualitative studies so as to create new meanings from their results. We conducted a qualitative meta-synthesis to systematically evaluate and integrate the caregiving experiences of adult children providing care for an elderly parent with cancer. The search was conducted in the databases Web of Science, PubMed, Embase, MEDLINE, Cochrane Library, Grew Literature in the Health Sciences, CNKI, WanFang Data, VIP, SINOMED and China Academic Journals as well as Chinese grey literature databases (China Academic Conference Literature Database/, National Science and Technology Library) from inception to June 9, 2021. Thirteen studies were included in the final synthesis. The caregiver experiences they describe are synthesised into three primary themes: care needs, care burden and care gains, with numerous secondary themes. Besides our findings that seem to align with those from studies focused on other cultures, we have highlighted three main discoveries from the synthesis that stand out in the Chinese context: (1) many sub-themes related to specific caregiving skills; (2) a strong expectation for health professionals to improve their communication skills with family caregivers; (3) the negative and positive influences of filial piety in caregiving experiences. Our findings can help multidisciplinary healthcare teams in China support adult children as caregivers in their emphasis on improving caregiver education and training, ways of making the most of potential care gains, and ways of easing care burdens.

摘要

定性元综合是一种连贯的方法,通过综合过去的定性研究来回答一个总体研究问题,从而从研究结果中创造新的意义。我们进行了一项定性元综合,以系统地评估和整合成年子女为患有癌症的老年父母提供护理的护理经验。检索范围包括 Web of Science、PubMed、Embase、MEDLINE、Cochrane Library、Grew Literature in the Health Sciences、CNKI、WanFang Data、VIP、SINOMED 和中国学术期刊以及中国灰色文献数据库(中国学术会议文献数据库/,国家科学技术图书馆),检索时间截至 2021 年 6 月 9 日。最终综合分析纳入了 13 项研究。这些研究描述的护理人员的经验被综合为三个主要主题:护理需求、护理负担和护理收益,还有许多次要主题。除了我们的发现似乎与其他文化背景下的研究结果一致外,我们还从综合分析中突出了三个在中国背景下的主要发现:(1)与特定护理技能相关的许多子主题;(2)强烈期望卫生专业人员提高与家庭护理人员的沟通技巧;(3)孝道在护理经验中的消极和积极影响。我们的研究结果可以帮助中国多学科医疗保健团队支持成年子女作为护理人员,重点是加强对护理人员的教育和培训,充分利用潜在的护理收益,以及减轻护理负担。

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