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2
A qualitative meta-synthesis of the caregiving experiences of adult children providing care for cancer patients in China: Implications for multidisciplinary healthcare teams.成人子女照顾中国癌症患者的照护经验的定性元分析:对多学科医疗保健团队的启示。
Health Soc Care Community. 2022 Nov;30(6):e3829-e3842. doi: 10.1111/hsc.14073. Epub 2022 Oct 19.
3
Parent values and preferences underpinning treatment decision-making in poor-prognosis childhood cancer: a scoping review.支撑预后不良儿童癌症治疗决策的家长价值观和偏好:范围综述。
BMC Pediatr. 2022 Oct 14;22(1):595. doi: 10.1186/s12887-022-03635-1.
4
Information needs of children with leukemia and their parents' perspectives of their information needs: a qualitative study.白血病患儿及其家长的信息需求及家长对患儿信息需求的认知:一项定性研究。
BMC Pediatr. 2022 Jul 13;22(1):414. doi: 10.1186/s12887-022-03478-w.
5
The effect of physical and psychosocial symptoms on caregiver burden of parents of children with cancer.身体和心理社会症状对癌症患儿父母照顾者负担的影响。
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Investigating psychological problems in caregiver of pediatrics with cancer: A systematic review.调查癌症患儿照料者的心理问题:一项系统综述。
J Child Adolesc Psychiatr Nurs. 2020 Nov;33(4):229-238. doi: 10.1111/jcap.12269. Epub 2020 Apr 10.
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Health behaviors of caregivers of childhood cancer survivors: a cross-sectional study.照顾儿童癌症幸存者的健康行为:一项横断面研究。
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中文版儿童癌症照顾者支持性护理需求量表(SCNS-C-Ped-C)的心理计量学评估。

Psychometric evaluation of the Chinese version of the supportive care needs survey for caregivers of children with Paediatric cancer (SCNS-C-Ped-C).

机构信息

School of Nursing, The Naval Medical University, Shanghai, China.

Department of Nursing, Children's Hospital of Fudan University, Shanghai, China.

出版信息

Nurs Open. 2023 Jul;10(7):4196-4204. doi: 10.1002/nop2.1703. Epub 2023 Mar 9.

DOI:10.1002/nop2.1703
PMID:36894867
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10277448/
Abstract

AIM

To revise the Supportive Care Needs Survey for Partners and Caregivers of Cancer Patients (SCNS-P&C) and evaluate the psychometric properties of the Chinese Version of the Supportive Care Needs Survey for Caregivers of Children with Paediatric Cancer (SCNS-C-Ped-C) in caregivers of children with paediatric cancer.

DESIGN

A cross sectional design was used.

METHODS

In this methodological research, the reliability and validity of the SCNS-C-Ped-C were measured by a questionnaire survey among 336 caregivers of children with paediatric cancer in China. The construct validity was evaluated by exploratory factor analysis and internal consistency was examined by Cronbach's alpha, split-half reliability, and corrected item-to-total correlation coefficients.

RESULTS

The exploratory factor analysis revealed six factors consist of: Healthcare and Informational Needs, Daily Care and Communication Needs, Psychological and Spiritual Needs, Medical Service Needs, Economic Needs, and Emotional Needs, explaining 65.615% of the variance. The Cronbach's alpha was 0.968 at full scale and 0.603-0.952 on the six domains. The split-half reliability coefficient was 0.883 at full scale and 0.659-0.931 on the six domains.

CONCLUSIONS

The SCNS-C-Ped-C demonstrated both reliability and validity. It can be used to evaluate multi-dimensional supportive care needs for caregivers of children with paediatric cancer in China.

摘要

目的

修订癌症患者伴侣和照顾者的支持性护理需求调查(SCNS-P&C),并评估中文版儿童癌症照顾者支持性护理需求调查(SCNS-C-Ped-C)在儿童癌症照顾者中的心理测量特性。

设计

采用横断面设计。

方法

在这项方法学研究中,通过在中国 336 名儿童癌症照顾者的问卷调查来衡量 SCNS-C-Ped-C 的信度和效度。通过探索性因子分析评估结构效度,通过克朗巴赫α系数、半分可靠性和校正项目总分相关系数检验内部一致性。

结果

探索性因子分析显示,六个因素包括:医疗保健和信息需求、日常护理和沟通需求、心理和精神需求、医疗服务需求、经济需求和情感需求,解释了 65.615%的方差。全量表的克朗巴赫α系数为 0.968,六个领域的克朗巴赫α系数为 0.603-0.952。全量表的半分可靠性系数为 0.883,六个领域的半分可靠性系数为 0.659-0.931。

结论

SCNS-C-Ped-C 具有可靠性和有效性。它可以用于评估中国儿童癌症照顾者的多维支持性护理需求。