医学专业学生遗传状况不良信息沟通的教学视角。
Teaching perspectives on the communication of difficult news of genetic conditions to medical students.
机构信息
Department of Biochemistry, St. George's University, St. George's, Grenada.
Department of Pediatrics, University of Oklahoma School of Community Medicine, Tulsa, Oklahoma, USA.
出版信息
Am J Med Genet A. 2023 Jan;191(1):299-305. doi: 10.1002/ajmg.a.63003. Epub 2022 Oct 26.
Informing parents that their child has a diagnosis of Down syndrome (DS) is a common example of the delivery of unexpected or difficult news. Expectations and life planning will change, and if detected prenatally, discussions might include the option of pregnancy termination. Medical school curricula currently include training in breaking unexpected news; however, it is difficult to teach and assess. We use the perspectives of clinicians, educators, and a medical student who is the parent of a child with DS to frame a discussion on teaching, practicing, and assessing communication of difficult news in human genetics during medical school.
告知父母其孩子患有唐氏综合征（Down syndrome，DS）是传递意外或困难消息的常见例子。期望和生活规划将会改变，如果在产前发现，讨论可能包括终止妊娠的选择。医学院课程目前包括意外消息告知的培训；然而，这很难教授和评估。我们利用临床医生、教育工作者和一名医学学生（其孩子患有 DS）的观点，在医学院期间围绕人类遗传学中困难消息沟通的教学、实践和评估展开讨论。
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