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伴有症状的心房颤动的生活体验。

Experiences of living with symptomatic atrial fibrillation.

机构信息

Department of Nursing, Umeå University, Umeå, Sweden.

Department of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.

出版信息

Nurs Open. 2023 Mar;10(3):1821-1829. doi: 10.1002/nop2.1442. Epub 2022 Oct 30.

DOI:10.1002/nop2.1442
PMID:36309946
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9912440/
Abstract

AIM

To explore the experiences of living with symptomatic atrial fibrillation.

DESIGN

This study, with a descriptive qualitative design, was performed using semi-structured individual interviews.

METHOD

Six women and nine men with symptomatic atrial fibrillation were included. The transcribed interviews were analysed using qualitative content analysis. The COREQ checklist was followed.

RESULTS

The analysis resulted in a main theme, namely balancing life and included the themes striving for illness control, becoming a receiver or an active partner in care and dealing with changed self-image. The participants strived to understand their illness, prevent attacks and manage anxiety. Some of the participants were not involved in decision-making, were uninformed about self-care measures, reported a lack of continuity in care and felt that the doctors focused on information about the medical part of care.

摘要

目的

探讨有症状的心房颤动患者的生活体验。

设计

本研究采用描述性定性设计,使用半结构化个体访谈进行。

方法

纳入了 6 名女性和 9 名男性有症状的心房颤动患者。对转录的访谈进行了定性内容分析。遵循了 COREQ 清单。

结果

分析结果得出一个主要主题,即平衡生活,包括努力控制疾病、成为护理的接受者或积极伙伴以及应对自我形象改变的主题。参与者努力了解自己的病情、预防发作和管理焦虑。一些参与者没有参与决策、对自我护理措施不知情、报告护理连续性不足,并且感到医生关注的是关于医疗护理部分的信息。

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Experiences of living with symptomatic atrial fibrillation.伴有症状的心房颤动的生活体验。
Nurs Open. 2023 Mar;10(3):1821-1829. doi: 10.1002/nop2.1442. Epub 2022 Oct 30.
2
Patient experiences with atrial fibrillation and treatment with implantable atrial defibrillation therapy.心房颤动患者的经历及植入式心房除颤治疗
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引用本文的文献

1
Illness Perceptions and Health-Related Quality of Life in Women and Men With Atrial Fibrillation.心房颤动患者的疾病感知与健康相关生活质量:女性与男性视角
J Cardiovasc Nurs. 2024;39(1):49-57. doi: 10.1097/JCN.0000000000000995. Epub 2023 Apr 19.

本文引用的文献

1
Exploring Patients' Values and Preferences for Initial Atrial Fibrillation Education.探索患者对初始心房颤动教育的价值观和偏好。
J Cardiovasc Nurs. 2020 Sep/Oct;35(5):445-455. doi: 10.1097/JCN.0000000000000716.
2
Abstraction and interpretation during the qualitative content analysis process.定性内容分析过程中的抽象和解释。
Int J Nurs Stud. 2020 Aug;108:103632. doi: 10.1016/j.ijnurstu.2020.103632. Epub 2020 May 15.
3
Patients' Experiences of Living with Atrial Fibrillation: A Mixed Methods Study.心房颤动患者的生活体验:一项混合方法研究。
Cardiol Res Pract. 2019 Dec 3;2019:6590358. doi: 10.1155/2019/6590358. eCollection 2019.
4
Health-Related Quality of Life and Associated Factors in Patients with Atrial Fibrillation: An Integrative Literature Review.心房颤动患者的健康相关生活质量及其相关因素:综合文献回顾。
Int J Environ Res Public Health. 2019 Aug 22;16(17):3042. doi: 10.3390/ijerph16173042.
5
Factors associated with confidence in decision making and satisfaction with risk communication among patients with atrial fibrillation.与房颤患者决策信心及风险沟通满意度相关的因素。
Eur J Cardiovasc Nurs. 2018 Jun;17(5):446-455. doi: 10.1177/1474515117741891. Epub 2017 Nov 14.
6
Symptoms, acceptance of illness and health-related quality of life in patients with atrial fibrillation.心房颤动患者的症状、疾病接受度及健康相关生活质量
Eur J Cardiovasc Nurs. 2018 Mar;17(3):262-272. doi: 10.1177/1474515117733731. Epub 2017 Sep 21.
7
Management of newly diagnosed atrial fibrillation in an outpatient clinic setting-patient's perspectives and experiences.初诊心房颤动患者的门诊管理——患者的观点和体验。
J Clin Nurs. 2018 Feb;27(3-4):601-611. doi: 10.1111/jocn.13951. Epub 2017 Nov 10.
8
Methodological challenges in qualitative content analysis: A discussion paper.定性内容分析中的方法学挑战:一篇讨论论文。
Nurse Educ Today. 2017 Sep;56:29-34. doi: 10.1016/j.nedt.2017.06.002. Epub 2017 Jun 17.
9
2016 ESC Guidelines for the management of atrial fibrillation developed in collaboration with EACTS.2016年欧洲心脏病学会(ESC)与欧洲心胸外科学会(EACTS)合作制定的心房颤动管理指南。
Eur Heart J. 2016 Oct 7;37(38):2893-2962. doi: 10.1093/eurheartj/ehw210. Epub 2016 Aug 27.
10
Patient empowerment, patient participation and patient-centeredness in hospital care: A concept analysis based on a literature review.医院护理中的患者赋权、患者参与和以患者为中心:基于文献综述的概念分析
Patient Educ Couns. 2016 Dec;99(12):1923-1939. doi: 10.1016/j.pec.2016.07.026. Epub 2016 Jul 18.