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囊性纤维化的过渡期护理。

Transitions of Care in Cystic Fibrosis.

机构信息

Internal Medicine and Pediatrics, Yale School of Medicine, New Haven, CT, USA.

Internal Medicine and Pediatrics, Yale School of Medicine, New Haven, CT, USA; Yale Adult Cystic Fibrosis Program, Section of Pulmonary, Critical Care, and Sleep Medicine, Yale School of Medicine, New Haven, CT, USA.

出版信息

Clin Chest Med. 2022 Dec;43(4):757-771. doi: 10.1016/j.ccm.2022.06.016.

Abstract

The development of formal transition models emerged to reduce variability in care, including cystic fibrosis (CF) responsibility, independence, self-care, and education (RISE), which provides a standardized transition program, including knowledge assessments, self-management checklists, and milestones for people with CF. Despite these interventions, the current landscape of health care transition (HCT) remains suboptimal, and additional focused attention on HCT is necessary. Standardization of assessment tools to gauge the efficacy of transfer from pediatric to adult care is a high priority. Such tools should incorporate both clinical and patient-centered outcomes to provide a comprehensive picture of progress and deficiencies of the HCT process.

摘要

正式的过渡模式的发展旨在减少护理中的变异性,包括囊性纤维化 (CF) 的责任、独立性、自我护理和教育 (RISE),它提供了一个标准化的过渡计划,包括知识评估、自我管理清单和 CF 患者的里程碑。尽管有这些干预措施,但当前的医疗保健过渡 (HCT) 状况仍不理想,需要进一步关注 HCT。评估工具的标准化以衡量从儿科到成人护理的转移效果是当务之急。这些工具应结合临床和以患者为中心的结果,全面了解 HCT 过程的进展和不足。

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