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旨在改善父母与癌症患儿沟通的支持干预措施的疗效:一项随机试点试验。

Efficacy of a support intervention designed to improve parents' communication with children dealing with parental cancer: a randomized pilot trial.

机构信息

Institut Jules Bordet, Clinique de Psycho-Oncologie, Rue Meylemeersch, 90, 1070, Anderlecht, Brussels, Belgium.

Université Libre de Bruxelles, Unité de Recherche en Psychosomatique et Psycho-Oncologie, 50 Avenue Franklin Roosevelt, Brussels, Belgium.

出版信息

Support Care Cancer. 2022 Dec;30(12):9823-9832. doi: 10.1007/s00520-022-07380-0. Epub 2022 Nov 8.

DOI:10.1007/s00520-022-07380-0
PMID:36344827
Abstract

OBJECTIVE

Cancer-related communication is critical for parents' and children's adaptation to the disease. This randomized pilot study was conducted to test the feasibility, acceptability, and efficacy of a 4-session intervention designed to improve parents' communication.

METHODS

A 4-session intervention was developed to aid parents to support their children through more open/adapted communication. Sixty-six parents were assigned randomly to informational booklet with and without 4-session support intervention arms. Parents' communication self-efficacy, communication behaviors, communication difficulties, knowledge about age-appropriate communication, theoretical knowledge about concerns of children, parenting concerns, and distress were assessed by questionnaires at baseline and post-interventions. Multivariate analyses of variance were performed to compare data between and within groups over time.

RESULTS

The intervention attrition rate was 6%. Data from 60 participants were included in analyses. Parents in the informational booklet with 4-session support group increased their communication self-efficacy (F = 4.5, p = 0.04), reduced communication difficulties (F = 4.0, p = 0.05), and increased their knowledge about how to communicate (F = 4.8, p = 0.03).

CONCLUSION

The results indicate that the 4-session intervention is acceptable, and shows preliminary evidence of efficacy.

PRACTICE IMPLICATIONS

A short support intervention associated with an informational booklet may be useful for parents wishing to improve their communication with their children.

摘要

目的

癌症相关的沟通对父母和孩子适应疾病至关重要。本随机试点研究旨在测试旨在改善父母沟通的 4 节干预措施的可行性、可接受性和有效性。

方法

制定了 4 节干预措施,以帮助父母通过更开放/适应的沟通方式来支持他们的孩子。将 66 名父母随机分配到信息手册加和不加 4 节支持干预组。父母的沟通自我效能感、沟通行为、沟通困难、关于适龄沟通的知识、关于儿童关注的理论知识、育儿关注和困扰通过问卷在基线和干预后进行评估。进行了时间内的组间和组内的多元方差分析。

结果

干预的脱落率为 6%。有 60 名参与者的数据被纳入分析。在信息手册加 4 节支持组的父母增加了他们的沟通自我效能感(F=4.5,p=0.04),减少了沟通困难(F=4.0,p=0.05),并增加了他们关于如何沟通的知识(F=4.8,p=0.03)。

结论

结果表明,4 节干预措施是可以接受的,并且显示出初步的疗效证据。

实践意义

与信息手册相关的简短支持干预措施可能对希望改善与孩子沟通的父母有用。

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