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个体进行基因检测的意愿是否存在“大流行效应”?

Is there a "pandemic effect" on individuals' willingness to take genetic tests?

机构信息

University of Lausanne, Lausanne, Switzerland.

出版信息

Eur J Hum Genet. 2023 Mar;31(3):360-362. doi: 10.1038/s41431-022-01223-6. Epub 2022 Nov 10.

Abstract

In this cross-sectional, semi-longitudinal and quasi-experimental study, our goal was to determine the effect of data storage conditions on willingness to take a genetic test. We compared individuals' preferences regarding how they want to store health data collected from genetic tests through two survey experiments fielded in Switzerland in March 2020 and January 2022. We tested for differences whether genetic data are presented as private goods or public goods. Results confirm our initial research expectation: more control over storage increases willingness, so does framing genetic data as private good. However, they also show that the willingness to take a genetic test has noticeably increased between 2020 and 2022. Our results point toward a "pandemic effect" which would have increased willingness take a genetic test, nevertheless, more data are needed to understand this putative effect.

摘要

在这项横断面、半纵向和准实验研究中,我们的目标是确定数据存储条件对接受基因检测意愿的影响。我们通过 2020 年 3 月和 2022 年 1 月在瑞士进行的两项调查实验,比较了个人对通过基因检测收集的健康数据的存储偏好。我们通过将遗传数据作为私人商品或公共商品进行测试,以检验差异。结果证实了我们最初的研究预期:对存储的更多控制会增加意愿,将遗传数据框定为私人商品也是如此。然而,它们也表明,2020 年至 2022 年间,接受基因检测的意愿明显增加。我们的结果表明存在“大流行效应”,这会增加接受基因检测的意愿,但需要更多数据来理解这种推测性影响。

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