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基于网络的西班牙语版巴塞尔指数在多发性硬化症患者中的应用开发。

Development of the Web-Based Spanish Version of the Barthel Index in Patients with Multiple Sclerosis.

机构信息

Departamento de Fisioterapia, Facultad de Ciencias de la Salud, Centro Superior de Estudios Universitarios La Salle, Universidad Autónoma de Madrid, 28049 Madrid, Spain.

Motion in Brains Research Group, Centro Superior de Estudios Universitarios La Salle, Universidad Autónoma de Madrid, 28049 Madrid, Spain.

出版信息

Int J Environ Res Public Health. 2022 Oct 27;19(21):13965. doi: 10.3390/ijerph192113965.

Abstract

BACKGROUND

The aims of this study were to develop a web-based Spanish form of the Barthel index (BI), to evaluate its psychometric properties and stability over time (test-retest), and to determine minimal detectable change (MDC) in patients with multiple sclerosis (MS).

METHODS

Participants answered the BI on two forms (web-based and face-to-face interview), 7-10 days apart. The internal consistency was evaluated using Cronbach's alpha, and intraclass correlation (ICC) and kappa (κ) coefficients were used to investigate the agreement between both forms.

RESULTS

143 participants were included. The Spanish web-based form of the BI showed excellent agreement between both forms for each item (κ = 0.86 (0.79 to 0.92), and for total score (κ = 0.87 (0.81 to 0.93); ICC = 0.99 (0.98 to 0.99). The internal consistency was good-excellent (Cronbach's alpha = 0.89 (0.86-0.91)). The stability over time was adequate, the agreement of each item was κ = 0.63 (0.52-0.74)), and for total score (ICC = 0.97), determining a MDC of 12.09 points.

CONCLUSIONS

The Spanish web-based form of the BI is a valid and reliable tool to assess functionality and can be applied in both formats in patients with MS. A total score difference of more than 12 points was found to indicate a deterioration or improvement in the patient's functionality.

摘要

背景

本研究旨在开发一种基于网络的西班牙语版巴氏指数(BI),评估其在时间上的心理测量学特性和稳定性(测试-重测),并确定多发性硬化症(MS)患者的最小可检测变化(MDC)。

方法

参与者在相隔 7-10 天的时间内通过两种形式(基于网络和面对面访谈)回答 BI。使用 Cronbach's alpha 评估内部一致性,使用组内相关系数(ICC)和kappa(κ)系数评估两种形式之间的一致性。

结果

共纳入 143 名参与者。BI 的西班牙语网络版在每个项目(κ=0.86(0.79-0.92)和总分(κ=0.87(0.81-0.93))以及总分(ICC=0.99(0.98-0.99))之间显示出极好的一致性。内部一致性良好至优秀(Cronbach's alpha=0.89(0.86-0.91))。时间稳定性充足,每个项目的一致性为κ=0.63(0.52-0.74),总分的一致性为 ICC=0.97,确定了 12.09 分的 MDC。

结论

BI 的西班牙语网络版是一种有效可靠的评估功能的工具,可用于 MS 患者的两种格式。总分差异超过 12 分表明患者的功能有恶化或改善。

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本文引用的文献

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Multiple sclerosis - a review.多发性硬化症——综述。
Eur J Neurol. 2019 Jan;26(1):27-40. doi: 10.1111/ene.13819. Epub 2018 Nov 18.
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Diagnosis of multiple sclerosis: 2017 revisions of the McDonald criteria.多发性硬化症的诊断:2017 年麦当劳标准修订版。
Lancet Neurol. 2018 Feb;17(2):162-173. doi: 10.1016/S1474-4422(17)30470-2. Epub 2017 Dec 21.

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