《归家之旅：从严重 ME/CFS 中康复的年轻女性》
The fragile process of Homecoming - Young women in recovery from severe ME/CFS.
机构信息
Faculty of Health Sciences, Department of Physiotherapy, Oslo Metropolitan University, Oslo, Norway.
Children's Surgical Department, Division of Head, Neck and Reconstructive Surgery, Pediatric Nurse, Oslo University Hospital, Oslo, Norway.
出版信息
Int J Qual Stud Health Well-being. 2023 Dec;18(1):2146244. doi: 10.1080/17482631.2022.2146244.
PURPOSE
To explore the recovery narratives of 13 young women who had fallen ill with severe Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), during childhood and adolescence, with the focus on what they had to say about their past experiences from the perspective of the present.
METHOD
A qualitative narrative approach, informed by a phenomenological theoretical perspective, was adopted to explore what the women found significant and meaningful in their recovery process. Data analysis of in-depth narrative interviews was performed which are presented to readers through the stories of two particular participants.
RESULTS
The first story describes how one participant made a recovery by testing her body's tolerance and working to create a more confident self. The second story describes a complex exploration of possibilities for action in recovery, along with a struggle to make sense of setbacks and hold on to what has been gained.
CONCLUSION
Recovering from ME/CFS emerges as an inter-personal, contextual, fragile and nonlinear process of homecoming, based on gradually rising bodily based self-knowledge. Illness slowly fades away into the background, and there is the prospect of a healthier tomorrow.
目的
探索 13 名在儿童和青少年时期患上严重肌痛性脑脊髓炎（ME），也称为慢性疲劳综合征（CFS）的年轻女性的康复叙述，重点是从现在的角度了解她们对过去经历的看法。
方法
采用定性叙事方法，受现象学理论观点的启发，探索女性在康复过程中发现的重要和有意义的内容。对深入的叙事访谈进行数据分析，并通过两位特定参与者的故事呈现给读者。
结果
第一个故事描述了一名参与者如何通过测试身体的耐受性并努力建立更自信的自我来恢复健康。第二个故事描述了对恢复过程中行动可能性的复杂探索，以及努力理解挫折并坚持已取得的成果。
结论
从 ME/CFS 中恢复过来是一个基于逐渐上升的基于身体的自我认知的、人际的、上下文的、脆弱的和非线性的回家过程。疾病逐渐消失在背景中，未来有更健康的前景。
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