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中国首次发生卒中的中青年患者及其配偶照顾者的获益发现:一项纵向混合方法研究方案。

Benefit finding in first-ever young and middle-aged patients who had a stroke and their spousal caregivers in China: a longitudinal mixed-methods study protocol.

机构信息

School of Nursing and Health, Zhengzhou University, Zhengzhou, Henan, China.

Department of Pediatrics, Women and Children's Hospital, Xiamen University School of Medicine, Xiamen, Fujian, China.

出版信息

BMJ Open. 2022 Nov 14;12(11):e062859. doi: 10.1136/bmjopen-2022-062859.

DOI:10.1136/bmjopen-2022-062859
PMID:36375986
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9664300/
Abstract

INTRODUCTION

The global burden caused by stroke is shifting to young and middle-aged people. Researchers have emphasised the significance of benefit finding (BF) in psychological health. However, current research has paid little attention to stroke and has discussed BF from only a single perspective, that is, that of either patients or caregivers. Our study aims to understand the changing trajectory, predictors and dyadic interaction of BF in dyads of patient who had a stroke and caregiver.

METHODS AND ANALYSIS

This study is a longitudinal mixed-methods, multicentre study. A total of 142 patients who had a stroke and 142 spousal caregivers will be investigated. Participants will be recruited from four large public hospitals in northern China. Quantitative and qualitative data will be collected at five time points (near discharge and 1, 3, 6 and 12 months following discharge). Validated and reliable questionnaires will be used in quantitative studies. Information on sociodemographic data, BF, functional status, perceived stress, coping styles and mutuality will be collected from the dyads. Qualitative data will be collected via semistructured interviews and observations. The growth mixture model will be used to analyse quantitative data, and Colaizzi's seven-step analysis method will be used to analyse qualitative data. We plan to conduct parallel but separate quantitative and qualitative data analyses and ultimately integrate the data sets to determine confirmation, expansion or discordance.

ETHICS AND DISSEMINATION

All participants will be provided with an informed consent form. This study will encode all identifiable data and store all recorded data on a secure research server. This study has been approved by the Ethics Review Committee of the College of Nursing and Health, Zhengzhou University (ZZUIRB2020-53). The results of the longitudinal study will be published in peer-reviewed journals and presented at national conferences.

TRIAL REGISTRATION NUMBER

ChiCTR2000039509.

摘要

简介

由中风引起的全球负担正在向年轻人和中年人转移。研究人员强调了益处发现(BF)在心理健康中的重要性。然而,目前的研究很少关注中风,并且仅从患者或照顾者的单一角度讨论了 BF。我们的研究旨在了解中风患者和照顾者二人组中 BF 的变化轨迹、预测因素和对偶相互作用。

方法和分析

这是一项纵向混合方法、多中心研究。共有 142 名中风患者和 142 名配偶照顾者将参与研究。参与者将从中国北方的四家大型公立医院招募。将在五个时间点(出院时以及出院后 1、3、6 和 12 个月)收集定量和定性数据。定量研究将使用经过验证和可靠的问卷。将从二人组收集社会人口统计学数据、BF、功能状态、感知压力、应对方式和相互性信息。定性数据将通过半结构化访谈和观察收集。增长混合物模型将用于分析定量数据,而 Colaizzi 的七步分析法将用于分析定性数据。我们计划进行并行但独立的定量和定性数据分析,并最终整合数据集以确定确认、扩展或不一致。

伦理和传播

将向所有参与者提供知情同意书。本研究将对所有可识别数据进行编码,并将所有记录的数据存储在安全的研究服务器上。本研究已获得郑州大学护理与健康学院伦理审查委员会的批准(ZZUIRB2020-53)。这项纵向研究的结果将发表在同行评议的期刊上,并在全国会议上展示。

临床试验注册号

ChiCTR2000039509。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/d44e3d557ba5/bmjopen-2022-062859f03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/16462cc9dd92/bmjopen-2022-062859f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/a5e2fe95b5fd/bmjopen-2022-062859f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/d44e3d557ba5/bmjopen-2022-062859f03.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/16462cc9dd92/bmjopen-2022-062859f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/a5e2fe95b5fd/bmjopen-2022-062859f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1ba3/9664300/d44e3d557ba5/bmjopen-2022-062859f03.jpg

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