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患有多种疾病的儿童:他们在卫生系统应对新冠疫情中的明显脆弱性及其在复苏阶段的公正诉求。

Children with medical complexities: their distinct vulnerability in health systems' Covid-19 response and their claims of justice in the recovery phase.

机构信息

Ethox Centre and Wellcome Centre for Ethics and Humanities, Nuffield Department of Population Health, University of Oxford, Oxford, UK.

出版信息

Med Health Care Philos. 2023 Mar;26(1):13-20. doi: 10.1007/s11019-022-10119-7. Epub 2022 Nov 16.

DOI:10.1007/s11019-022-10119-7
PMID:36383340
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9667430/
Abstract

In this paper, we discuss the lack of consideration given to children in the COVID-19 health systems policy response to the pandemic. We do this by focusing on the case of children with complex medical needs. We argue that, in broad terms, health systems policies that were implemented during the pandemic failed adequately to meet our obligations to both children generally and those with complex medical needs by failing to consider those needs and so to give them fair protection against harm and disadvantage. We argue that justice requires that the distinct needs and vulnerabilities of children with medical complexities are explicitly integrated and prioritised in decisions concerning healthcare and operational planning in the recovery phase and beyond.

摘要

在本文中,我们讨论了在大流行期间针对 COVID-19 的卫生系统政策应对措施中对儿童的关注不足。我们通过关注有复杂医疗需求的儿童的情况来做到这一点。我们认为,从广义上讲,大流行期间实施的卫生系统政策未能充分履行我们对一般儿童和有复杂医疗需求儿童的义务,因为这些政策没有考虑到这些需求,因此未能公平地保护他们免受伤害和不利。我们认为,正义要求在医疗保健和运营规划方面的决策中明确纳入和优先考虑具有医疗复杂性的儿童的特殊需求和脆弱性,这不仅是在复苏阶段,而且是在之后。

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引用本文的文献

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Children with medical complexity care journey during COVID-19 from providers perspective: a qualitative study.从医疗服务提供者角度看新冠疫情期间患有复杂疾病儿童的护理历程:一项定性研究
BMC Health Serv Res. 2025 May 22;25(1):740. doi: 10.1186/s12913-025-12857-9.
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Perceived social support and characteristics of social networks of families with children with special healthcare needs following the COVID-19 pandemic.新冠疫情后,有特殊医疗需求儿童的家庭的感知社会支持和社交网络特征。
Front Public Health. 2024 Feb 29;12:1322185. doi: 10.3389/fpubh.2024.1322185. eCollection 2024.
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Accessing healthcare during the COVID-19 pandemic: a qualitative exploration of the experiences of parents and carers of children with chronic illness to inform future policies in times of crisis.在 COVID-19 大流行期间获得医疗保健:一项定性研究,探索了患有慢性病儿童的父母和照顾者的经验,以便在危机时期为未来的政策提供信息。
BMC Health Serv Res. 2023 May 23;23(1):530. doi: 10.1186/s12913-023-09452-1.
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Healthcare prioritisation and inequitable inequalities: why a child health perspective should be incorporated into the current NHS guidance.医疗保健的优先排序与不公平的不平等:为何应将儿童健康视角纳入当前的英国国家医疗服务体系指南。
Arch Dis Child. 2023 Dec 14;109(1):69-70. doi: 10.1136/archdischild-2023-325634.

本文引用的文献

1
Changes in Healthcare Provision During Covid-19 and Their Impact on Children With Chronic Illness: A Scoping Review.新冠疫情期间医疗服务的变化及其对慢性病患儿的影响:系统评价。
Inquiry. 2022 Jan-Dec;59:469580221081445. doi: 10.1177/00469580221081445.
2
'Do I, don't I?' A qualitative study addressing parental perceptions about seeking healthcare during the COVID-19 pandemic.“我该去,还是不该去?”一项定性研究探讨了父母在 COVID-19 大流行期间寻求医疗保健的看法。
Arch Dis Child. 2021 Nov;106(11):1118-1124. doi: 10.1136/archdischild-2020-321260. Epub 2021 Mar 10.
3
The perceived impact of COVID-19 and associated restrictions on young people with epilepsy in the UK: Young people and caregiver survey.新冠疫情对英国青少年癫痫患者的影响及相关限制:青少年与照顾者调查。
Seizure. 2021 Feb;85:111-114. doi: 10.1016/j.seizure.2020.12.024. Epub 2021 Jan 8.
4
Indirect effects of the COVID-19 pandemic on paediatric healthcare use and severe disease: a retrospective national cohort study.COVID-19 大流行对儿科医疗保健利用和严重疾病的间接影响:一项回顾性全国队列研究。
Arch Dis Child. 2021 Sep;106(9):911-917. doi: 10.1136/archdischild-2020-321008. Epub 2021 Jan 15.
5
Evaluating risk to people with epilepsy during the COVID-19 pandemic: Preliminary findings from the COV-E study.评估 COVID-19 大流行期间癫痫患者的风险:COV-E 研究的初步发现。
Epilepsy Behav. 2021 Feb;115:107658. doi: 10.1016/j.yebeh.2020.107658. Epub 2020 Nov 28.
6
Priorities for the child public health response to the COVID-19 pandemic recovery in England.英国儿童公共卫生应对新冠疫情后恢复工作的重点事项。
Arch Dis Child. 2021 Jun;106(6):533-538. doi: 10.1136/archdischild-2020-320214. Epub 2020 Dec 9.
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