Andersen Tine Riis
Norwegian Centre for Reading Education and Research, University of Stavanger, Stavanger, Norway.
Faculty of Education, University of Trnava, Trnava, Slovakia.
Front Psychol. 2022 Nov 1;13:1017166. doi: 10.3389/fpsyg.2022.1017166. eCollection 2022.
This study explored 12 cancer patients' experiences from participating in an online and on-site Shared Reading group for 16 weeks in Norway. Shared Reading is a practice in which prose and poetry are read aloud in small parts and discussed along the way. The study is a qualitative evaluation study with a particular focus on how the participants experienced the reading group supported their life living with cancer. The study was mainly based on the data collected from focus group discussions with the participants, which was analysed qualitatively through open coding. In total, four themes were identified: (1) open space, (2) disconnecting through connecting, (3) community, and (4) resonances and echoes. The participants expressed that the RG helped them to "balance life and cancer", and "disconnect" from their illness. The cognitive effort needed was beneficial for the participants as a form for "cognitive training." Since many of the participants had, due to their illness, completely stopped reading books, the reading group also brought literature back into the participants' lives. Furthermore, it was essential for the participants to feel they contributed to a community, to feel useful and valuable for others. The texts were also important, as some of them resonated strongly with the participants in the way of activating memories and connecting a text to own experiences. After a session, a text could still have an impact as an echo. The results are synthesised, discussed, and supported through the framework of self-determination theory and, more specifically, the basic psychological need theory. The reading group was experienced as a support for autonomy, competence, and relatedness and promoted a feeling of intrinsic motivation that brought about new dimensions in the participants' lives. The study wishes to increase our knowledge of the benefits of integrating Shared Reading groups as a low-cost, literature-based psychosocial support in cancer organisations.
本研究探讨了12名癌症患者参与挪威一个为期16周的线上和线下共享阅读小组的经历。共享阅读是一种将散文和诗歌分成小部分大声朗读并沿途进行讨论的活动。该研究是一项定性评估研究，特别关注参与者如何体验阅读小组对他们患癌生活的支持。该研究主要基于从与参与者的焦点小组讨论中收集的数据，并通过开放式编码进行定性分析。总共确定了四个主题：（1）开放空间，（2）通过连接实现断开，（3）社区，以及（4）共鸣与回响。参与者表示，阅读小组帮助他们“平衡生活与癌症”，并从疾病中“解脱”出来。所需的认知努力对参与者来说是有益的，是一种“认知训练”形式。由于许多参与者因病完全停止了阅读书籍，阅读小组也让文学重新回到了参与者的生活中。此外，对参与者来说，感到自己对一个社区有贡献、对他人有用且有价值至关重要。文本也很重要，因为其中一些文本以激活记忆并将文本与自身经历相联系的方式，与参与者产生了强烈共鸣。一次活动结束后，一篇文本仍可能作为一种回响产生影响。研究结果通过自我决定理论框架，更具体地说是基本心理需求理论进行了综合、讨论和支持。阅读小组被体验为对自主性、能力和关联性的支持，并促进了一种内在动机感，为参与者的生活带来了新的维度。该研究希望增加我们对将共享阅读小组作为癌症组织中一种低成本、基于文学的心理社会支持的益处的认识。
