Zhang Shu, Xue Wingel, Boorman Eric Pickering, Ruvalcaba Elizabeth, David Mandy, Lanzkron Sophie Miriam, Eakin Michelle Nuttall
Division of Hematology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Division of Pulmonary and Critical Care Medicine, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Telemed J E Health. 2023 Jul;29(7):1068-1077. doi: 10.1089/tmj.2022.0387. Epub 2022 Nov 17.
Background:The COVID-19 pandemic necessitated a rapid transition to telemedicine, providing a critical opportunity to study telemedicine satisfaction and usability in patients with sickle cell disease (SCD).
Methods:A cross-sectional survey was completed by 99 adult SCD patients who participated in at least one telemedicine visit between March and July 2020. Telemedicine satisfaction and usability were assessed with the Telemedicine Satisfaction Questionnaire (TSQ) and System Usability Scale (SUS), respectively. Preference for video visits was assessed with a 1-10 rating scale, with 10 indicating the highest preference. Measures of anxiety, depression, and patient activation were also assessed. Linear and logistic regressions were performed to evaluate for socioeconomic and psychosocial correlates of telemedicine satisfaction, usability, and preference.
Results:Participants were 72% women, with a mean age of 39 years. The median (interquartile range [IQR]) TSQ was 56 (52-64) out of 70, indicating high satisfaction. The median (IQR) SUS was 72.5 (62.5-82.5) out of 100, indicating above average usability. Participants tended to prefer video visits for regular care (median [IQR] rating of 7 [5-9]) but not for management of acute pain (median [IQR] rating of 4 [2-8]). Neither satisfaction nor usability was associated with age or mental health. Telemedicine usability was positively associated with having private insurance compared with public insurance. Higher scores on both satisfaction and usability were associated with higher patient activation.
Conclusions:Adults with SCD report good usability and high satisfaction with telemedicine, across multiple demographic groups. Therefore, telemedicine has valuable potential to improve access to high-quality care for these patients.
新冠疫情使得迅速转向远程医疗成为必要，这为研究镰状细胞病（SCD）患者对远程医疗的满意度和易用性提供了关键契机。
99名成年SCD患者完成了一项横断面调查，这些患者在2020年3月至7月期间至少参加了一次远程医疗就诊。分别使用远程医疗满意度问卷（TSQ）和系统易用性量表（SUS）评估远程医疗的满意度和易用性。使用1 - 10评分量表评估对视频就诊的偏好，10表示最高偏好。还评估了焦虑、抑郁和患者激活度的指标。进行线性和逻辑回归以评估远程医疗满意度、易用性和偏好的社会经济及心理社会相关因素。
参与者中72%为女性，平均年龄39岁。TSQ中位数（四分位间距[IQR]）为70分中的56分（52 - 64分），表明满意度较高。SUS中位数（IQR）为100分中的72.5分（62.5 - 82.5分），表明易用性高于平均水平。参与者倾向于在常规护理中选择视频就诊（中位数[IQR]评分为7分[5 - 9分]），但在急性疼痛管理中并非如此（中位数[IQR]评分为4分[2 - 8分]）。满意度和易用性均与年龄或心理健康无关。与公共保险相比，远程医疗易用性与拥有私人保险呈正相关。满意度和易用性得分较高均与患者激活度较高相关。
不同人口统计学群体的成年SCD患者报告称远程医疗具有良好的易用性和较高的满意度。因此，远程医疗在改善这些患者获得高质量护理方面具有宝贵潜力。
