National Institute for Health and Care Research Imperial Patient Safety Translational Research Centre, Institute of Global Health Innovation, Imperial College London, London, United Kingdom.
Imperial College Healthcare NHS Trust, London, United Kingdom.
J Med Internet Res. 2022 Nov 17;24(11):e39973. doi: 10.2196/39973.
Web-based patient portals enable patients access to, and interaction with, their personal electronic health records. However, little is known about the impact of patient portals on quality of care. Users of patient portals can contribute important insights toward addressing this knowledge gap.
We aimed to describe perceived changes in the quality of care among users of a web-based patient portal and to identify the characteristics of patients who perceive the greatest benefit of portal use.
A cross-sectional web-based survey study was conducted to understand patients' experiences with the Care Information Exchange (CIE) portal. Patient sociodemographic data were collected, including age, sex, ethnicity, educational level, health status, geographic location, motivation to self-manage, and digital health literacy (measured by the eHealth Literacy Scale). Patients with experience using CIE, who specified both age and sex, were included in these analyses. Relevant survey items (closed-ended questions) were mapped to the Institute of Medicine's 6 domains of quality of care. Users' responses were examined to understand their perceptions of how portal use has changed the overall quality of their care, different aspects of care related to the 6 domains of care quality, and patient's satisfaction with care. Multinomial logistic regression analyses were performed to identify patient characteristics associated with perceived improvements in overall care quality and greater satisfaction with care.
Of 445 CIE users, 38.7% (n=172) reported that the overall quality of their care was better; 3.2% (n=14) said their care was worse. In the patient centeredness domain, 61.2% (273/445) of patients felt more in control of their health care, and 53.9% (240/445) felt able to play a greater role in decision-making. Regarding timeliness, 40.2% (179/445) of patients reported they could access appointments, diagnoses, and treatment more quickly. Approximately 30% of CIE users reported better care related to the domains of effectiveness (123/445, 27.6%), safety (138/445, 31%), and efficiency (174/445, 28.6%). Regarding equity, patients self-reporting higher digital health literacy (odds ratio 2.40, 95% CI 1.07-5.42; P=.03) and those belonging to ethnic minority groups (odds ratio 2.27, 95% CI 1.26-3.73; P<.005) were more likely to perceive improvements in care quality. Across ethnic groups, Asian and British Asian patients perceived the greatest benefits. Increased frequency of CIE use also predicted perceived better care quality and greater satisfaction with care.
A large proportion of CIE users perceived better care quality and greater satisfaction with care, although many portal users reported no change. The most favorable perceived improvements related to the domain of patient centeredness. With national policy directed toward addressing health disparities, patient portals could be valuable in improving care quality for ethnic minority groups. Future research should test the causal relationship between patient portal use and care quality.
基于网络的患者门户使患者能够访问和与他们的个人电子健康记录进行交互。然而,人们对患者门户对医疗质量的影响知之甚少。患者门户的用户可以为解决这一知识空白做出重要贡献。
本研究旨在描述患者对使用基于网络的患者门户后医疗质量的感知变化,并确定认为使用门户获益最大的患者的特征。
进行了一项基于网络的横断面调查研究,以了解患者对 Care Information Exchange(CIE)门户的体验。收集了患者的社会人口统计学数据,包括年龄、性别、种族、教育水平、健康状况、地理位置、自我管理动机和数字健康素养(通过电子健康素养量表测量)。包括有 CIE 使用经验且同时指定年龄和性别的患者纳入这些分析。将相关调查项目(封闭式问题)映射到医疗质量的 6 个领域。通过多项逻辑回归分析来确定与感知到的整体医疗质量改善和对医疗服务更高满意度相关的患者特征。
在 445 名 CIE 用户中,38.7%(n=172)报告他们的整体医疗质量更好;3.2%(n=14)表示他们的医疗质量更差。在以患者为中心的领域,61.2%(273/445)的患者表示他们对自己的医疗保健更有掌控感,53.9%(240/445)的患者表示他们能够在决策中发挥更大的作用。在及时性方面,40.2%(179/445)的患者表示他们可以更快地获得预约、诊断和治疗。大约 30%的 CIE 用户报告在有效性(123/445,27.6%)、安全性(138/445,31%)和效率(174/445,28.6%)领域的医疗服务得到改善。在公平性方面,自我报告数字健康素养较高的患者(优势比 2.40,95%置信区间 1.07-5.42;P=.03)和属于少数民族群体的患者(优势比 2.27,95%置信区间 1.26-3.73;P<.005)更有可能感知到医疗质量的改善。在各个族裔群体中,亚裔和英裔亚裔患者感知到的益处最大。CIE 使用频率的增加也预示着感知到的更好的医疗质量和对医疗服务的更高满意度。
尽管许多门户用户报告没有变化,但很大一部分 CIE 用户认为医疗质量和对医疗服务的满意度得到了提高。最有利的感知改善与以患者为中心的领域有关。随着国家政策致力于解决健康差异问题,患者门户可以在改善少数民族群体的医疗质量方面发挥重要作用。未来的研究应检验患者门户使用与医疗质量之间的因果关系。