Nayak Puneeth S, Goswami Parnini, Kumar Adarsh D, Bhaskar Prasheetha
Belagavi, Karnataka India Department of ENT, Head and Neck Surgery, J. N. Medical College, KLE Academy of Higher Education and Research.
Indian J Otolaryngol Head Neck Surg. 2023 Jun;75(2):397-403. doi: 10.1007/s12070-022-03196-w. Epub 2022 Nov 12.
To evaluate the Quality of Life in Mucormycosis patients in our hospital using a new MQOL36 questionnaire post discharge. 37 cases between Apr 2021 to July 2021 were included in the study with a minimum follow up period of 4 weeks. They were administered Mucormycosis quality-of-life questionnaire (MQOL-36) either in person or via telephonic interview and answers were recorded into digital questionnaire modulated by us using a digital data recording app-KoBoCollect. Their demographic, clinical, imaging, histopathological and treatment data was retrieved and analysed. Most of the patients reported their health to be good with only 1 patient who had extensive cranial involvement reporting as poor and still undergoing repeated surgeries. 46.67% had no nasal complaints, 20% had nasal obstruction, 13.33% had nasal discharge with 2 patients complaining of crusting and 1 of whistling sound at quiet respiration. Most worrying factor was financial condition with 33.33% patients financially distraught and 43.33% being affected but barely managing at present. Only 2 patients reported no economic impact. Mucormycosis in COVID-19 has changed the face of otorhinolaryngology as we know it-while treating the disease is important, treating the post operative aftermath also becomes equally important. The MQOL-36 produces a quality-of-life profile scoring an individual's perception of quality of life in the following domains: Physical, Psychological, Level of Independence, Social Relationships and Environment. Monitoring the quality of life in patients post discharge could help us manage the enormous morbidity associated with the disease.
使用新的MQOL36问卷评估我院毛霉菌病患者出院后的生活质量。2021年4月至2021年7月期间的37例患者纳入研究,最短随访期为4周。通过面对面或电话访谈对他们进行毛霉菌病生活质量问卷(MQOL-36)调查,并使用数字数据记录应用程序KoBoCollect将答案录入我们调制的数字问卷中。检索并分析他们的人口统计学、临床、影像学、组织病理学和治疗数据。大多数患者报告健康状况良好,只有1例广泛累及颅骨的患者报告健康状况较差,仍在接受多次手术。46.67%的患者无鼻部不适,20%的患者有鼻塞,13.33%的患者有鼻分泌物,2例患者抱怨有结痂,1例患者在安静呼吸时有吹哨声。最令人担忧的因素是经济状况,33.33%的患者经济困难,43.33%的患者受到影响但目前勉强维持。只有2例患者报告没有经济影响。正如我们所知,COVID-19中的毛霉菌病改变了耳鼻喉科的面貌——治疗疾病固然重要,但治疗术后后果同样重要。MQOL-36生成一份生活质量概况,对个体在以下领域的生活质量感知进行评分:身体、心理、独立水平、社会关系和环境。监测患者出院后的生活质量有助于我们应对与该疾病相关的巨大发病率。