Albayrak Bilge, Cordier Larissa Jane, Greve Sandra, Teschler Uta, Dathe Anne-Kathrin, Felderhoff-Müser Ursula, Hüning Britta Maria
Department of Pediatrics I, Neonatology, Pediatric Intensive Care and Pediatric Neurology, University Hospital Essen, University of Duisburg-Essen, Essen, Germany.
Center for Translational Neuro- and Behavioral Sciences, University Hospital Essen, University of Duisburg-Essen, Essen, Germany.
JMIR Pediatr Parent. 2023 Jan 25;6:e40940. doi: 10.2196/40940.
During the COVID-19 pandemic, parents of infants born very preterm or at risk were exceptionally worried about being infected. The only means of protection during the onset of the pandemic was social distancing. Video consultations for neurodevelopmental follow-up care were offered as an alternative way to stay in contact with patients and their families, to provide expert support, and to monitor and assess children's development.
To assess the feasibility of and family satisfaction with video consultations, interviews were conducted after video and in-person consultations.
An interview with 28 questions was created to evaluate parental satisfaction with the consultations (eg, their confidentiality and the children's behavior). A total of 93 interviews with parents were conducted between March 2020 and February 2021 and compared (58 after video consultations and 35 after in-person consultations). The interviews were conducted at the end of the consultations by a trained professional. The video consultations were conducted using a certified platform created by Zava Sprechstunde Online, maintaining data protection with end-to-end encryption. Follow-up consultations (video or in-person) were performed at corrected ages of 3, 6, and 12 months as well as 2, 3, 4, and 5 years. The rate of total follow-up appointments attended during the survey period was evaluated and compared with the previous year.
There were no significant differences between the video and in-person consultation groups in satisfaction, attitudes on the confidentiality of the consultation, or discussion of private and sensitive information. Following video consultations, parents were significantly more likely to report that they were avoiding contact with medical professionals during the pandemic (P=.045; Shapiro-Wilk W=1094.5, Cohen d=-0.1782146) than the in-person consultation group. Parents in the video-consultation group stated that performing a guided examination on their child was comfortable and helped them understand their child's development. In fact, they agreed to take advantage of future video consultations. The rate of total follow-up appointments increased compared to the previous year. Between March 2019 and February 2020, 782 of 984 (79.5%) children born at Essen University Hospital attended a follow-up appointment. During the survey period, between March 2020 and February 2021, a total of 788 of 1086 children (73%) attended a follow-up appointment, of which 117 (14.9%) were video consultations.
The feasibility of attending video consultations for follow-up care of very preterm or at-risk infants and parental satisfaction with these consultations were as high as for in-person consultations. Parents rated video consultations as being as confidential as in-person appointments. Telemedicine can be offered as an equivalent alternative to in-person consultations and is particularly useful under certain circumstances, such as for very sick children who require assistive devices or respiratory support and oxygen or for those living a long distance away.
在新冠疫情期间,极早产儿或有风险的婴儿的父母格外担心被感染。疫情初期唯一的防护手段是保持社交距离。提供神经发育随访护理的视频咨询作为与患者及其家人保持联系、提供专家支持以及监测和评估儿童发育的一种替代方式。
为评估视频咨询的可行性和家庭满意度,在视频咨询和面对面咨询后进行了访谈。
设计了一份包含28个问题的访谈,以评估父母对咨询的满意度(例如咨询的保密性和孩子的行为)。2020年3月至2021年2月期间,共对93位家长进行了访谈并进行比较(视频咨询后58例,面对面咨询后35例)。访谈在咨询结束时由一名经过培训的专业人员进行。视频咨询使用由Zava Sprechstunde Online创建的经过认证的平台进行,通过端到端加密维护数据保护。在矫正年龄3个月、6个月、12个月以及2岁、3岁、4岁和5岁时进行随访咨询(视频或面对面)。评估了调查期间参加的总随访预约率,并与上一年进行比较。
视频咨询组和面对面咨询组在满意度、对咨询保密性的态度或私人和敏感信息的讨论方面没有显著差异。视频咨询后,与面对面咨询组相比,家长更有可能报告他们在疫情期间避免与医疗专业人员接触(P = 0.045;夏皮罗-威尔克W = 1094.5,科恩d = -0.1782146)。视频咨询组的家长表示,对孩子进行有指导的检查很舒服,有助于他们了解孩子的发育情况。事实上,他们同意在未来利用视频咨询。与上一年相比,总随访预约率有所提高。2019年3月至2020年2月期间,埃森大学医院出生的984名儿童中有782名(79.5%)参加了随访预约。在调查期间,2020年3月至2021年2月期间,1086名儿童中共有788名(73%)参加了随访预约,其中117名(14.9%)是视频咨询。
极早产儿或有风险的婴儿进行随访护理的视频咨询的可行性以及家长对这些咨询的满意度与面对面咨询一样高。家长认为视频咨询与面对面预约一样保密。远程医疗可以作为面对面咨询的等效替代方式提供,并且在某些情况下特别有用,例如对于需要辅助设备或呼吸支持及氧气的重病儿童或居住在远方的儿童。