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作为日本癌症教育综合支持项目一部分的人类遗传学教育

Human genetics education as part of the Japanese Cancer Education Comprehensive Support Project.

作者信息

Yamada-Kurebayashi Fumi, Sasaki Motoko, Kuga Asami, Kojima Risa, Miyake Hidehiko

机构信息

Department of Genetic Counseling, Division of Life Sciences, Graduate School of Humanities and Sciences, Ochanomizu University, 2-1-1 Otsuka, Bunkyo-Ku, Tokyo, 112-8610, Japan.

Genetics Division, Institute for Human Life Innovation, Ochanomizu University, Tokyo, Japan.

出版信息

J Community Genet. 2023 Apr;14(2):163-174. doi: 10.1007/s12687-022-00623-x. Epub 2022 Nov 30.

Abstract

In Japan, cancer education has been initiated with children as a measure against cancer. Cancer genome medicine, which is a social implementation, includes aspects of genetic medicine. For this reason, it is assumed that content related to "genetics" is also necessary in cancer education. To investigate the actual situation regarding the teaching of genetics in cancer education, we conducted a questionnaire survey of schoolteachers involved in cancer education; these schoolteachers belonged to the model school of the Cancer Education Comprehensive Support Project. Regarding genetic content, we asked questions related to two aspects: "the molecular genetic mechanisms of cancer" and "the phenomenon of sharing cancer in the family." The results showed that about 60% of the teachers had experience teaching content related to the molecular genetic mechanisms of cancer and the phenomenon of sharing cancer in the family. While many teachers felt that teaching genetics in cancer education was necessary, they also felt that there were difficulties in doing so: 65.2% for content related to the molecular genetic mechanisms of cancer and 70.8% for that related to the phenomenon of sharing cancer in the family. It is important to properly treat cancer as a genetic disease, and it is necessary to examine government curriculum guidelines and establish a collaborative system among other subjects. In addition, the involvement of specialists in genetic medicine and psychosocial support is expected to improve teachers' genetic literacy as well as to communicate with students with consideration for their family history.

摘要

在日本,已将儿童癌症教育作为抗癌措施启动。作为一项社会实施项目的癌症基因组医学涵盖了基因医学的各个方面。因此,癌症教育中也需要与“遗传学”相关的内容。为了调查癌症教育中遗传学教学的实际情况,我们对参与癌症教育的学校教师进行了问卷调查;这些教师来自癌症教育综合支持项目的示范学校。关于遗传学内容,我们提出了与两个方面相关的问题:“癌症的分子遗传机制”和“家族中癌症的遗传现象”。结果显示,约60%的教师有过教授与癌症分子遗传机制和家族中癌症遗传现象相关内容的经历。虽然许多教师认为在癌症教育中教授遗传学是必要的,但他们也觉得这样做存在困难:与癌症分子遗传机制相关内容的困难比例为65.2%,与家族中癌症遗传现象相关内容的困难比例为70.8%。将癌症作为一种遗传疾病进行恰当治疗很重要,有必要审视政府的课程指导方针并建立与其他学科的协作体系。此外,预计基因医学专家和心理社会支持方面的人员参与进来,将提高教师的遗传学素养,并在考虑学生家族病史的情况下与学生进行沟通。

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