Kristensen Johannes Kjeldstrup, Nielsen Corina, Haloob Nora
Hud og Hyperhidrose-klinikken Copenhagen Denmark.
Imperial College Healthcare NHS Trust London UK.
Skin Health Dis. 2022 Sep 14;2(4):e167. doi: 10.1002/ski2.167. eCollection 2022 Dec.
It is widely acknowledged that negative body image perception is linked to anxiety, depression, and body dysmorphic disorder. However, there is no gold standard, body image related patient reported outcome measure in use, specific for dermatologic disease, despite evidence to suggest a high prevalence of mental health problems relating to body image in this group of patients.
The aim of this study was to perform a review of body image Patient Reported Outcome Measures (PROMs) used in dermatology and to evaluate their effectiveness.
Searches were performed in the major databases. Two investigators independently performed full text evaluation by applying an established checklist to evaluate the conceptual model, content validity, reliability, construct validity, scoring and interpretability and respondent burden.
Six different PROMs were identified of which only one was fully validated. There was a significant lack of patient involvement in the development of PROMs in this context.
We therefore encourage further research in this field to improve the quality of evidence to better understand the relationship between mental health and dermatologic disease.
人们普遍认为，负面的身体形象认知与焦虑、抑郁和身体变形障碍有关。然而，尽管有证据表明这类患者中与身体形象相关的心理健康问题患病率很高，但目前尚无用于皮肤科疾病的、被广泛认可的、与身体形象相关的患者报告结局指标。
本研究的目的是对皮肤科使用的身体形象患者报告结局指标（PROMs）进行综述，并评估其有效性。
在主要数据库中进行检索。两名研究者通过应用既定的清单独立进行全文评估，以评估概念模型、内容效度、信度、结构效度、评分与可解释性以及应答负担。
共识别出六种不同的PROMs，其中只有一种经过了全面验证。在这种情况下，PROMs的开发过程明显缺乏患者参与。
因此，我们鼓励在该领域开展进一步研究，以提高证据质量，从而更好地理解心理健康与皮肤科疾病之间的关系。
