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化脓性汗腺炎患者的身体意象生活质量与其他皮肤科疾病的比较。

Body Image Quality of Life in Patients with Hidradenitis Suppurativa Compared with Other Dermatological Disorders.

机构信息

Department of Dermatology, Zealand University Hospital, DK-4000 Roskilde, Denmark.

出版信息

Acta Derm Venereol. 2020 Apr 6;100(8):adv00107. doi: 10.2340/00015555-3464.

DOI:10.2340/00015555-3464
PMID:32201901
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9128911/
Abstract

Hidradenitis suppurativa is a chronic skin disease characterized by inflammation and disfiguring scarring in the intertriginous body areas. Hidradenitis suppurativa is associated with overweight and impaired quality of life. This study sought to describe Body Image Quality of Life (BI-QoL) in patients with hidradenitis suppurativa and to compare it with patients with other skin diseases (controls). A total of 285 participants were recruited, 141 with hidradenitis suppurativa and 144 controls, at the Department of Dermatology at Zealand University Hospital, Denmark (during 2017-18). The Danish "Body Image Quality of Life Inventory" questionnaire measured BI-QoL. Patients with hidradenitis suppurativa had significantly lower mean BI-QoL than controls: Hidradenitis suppurativa BI-QoL (standard deviation; SD) -0.87 (0.98) vs. control BI-QoL (SD) 0.01 (1.11), p < 0.001. Predictors of negative BI-QoL were hidradenitis suppurativa, increased body mass index, female sex, symptoms of depression, and body mass index moderated by hidradenitis suppurativa. These data suggest that BI-QoL is impaired in patients with hidradenitis suppurativa compared with patients with other skin diseases after adjusting for confounders.

摘要

化脓性汗腺炎是一种慢性皮肤病,其特征为在皱褶部位出现炎症和毁容性瘢痕。化脓性汗腺炎与超重和生活质量受损有关。本研究旨在描述化脓性汗腺炎患者的身体意象生活质量(BI-QoL),并将其与其他皮肤病患者(对照组)进行比较。共招募了 285 名参与者,其中 141 名患有化脓性汗腺炎,144 名为对照组,他们均在丹麦泽兰大学医院皮肤科就诊(2017-2018 年)。丹麦的“身体意象生活质量问卷”用于测量 BI-QoL。化脓性汗腺炎患者的 BI-QoL 明显低于对照组:化脓性汗腺炎 BI-QoL(平均值;标准差)为-0.87(0.98),对照组 BI-QoL(SD)为 0.01(1.11),p < 0.001。BI-QoL 较差的预测因素包括化脓性汗腺炎、体重指数增加、女性、抑郁症状和 BMI 受到化脓性汗腺炎的调节。这些数据表明,在调整混杂因素后,与其他皮肤病患者相比,化脓性汗腺炎患者的 BI-QoL 受损。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/16f8/9128911/e50813c4b5a3/ActaDV-100-8-5723-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/16f8/9128911/e50813c4b5a3/ActaDV-100-8-5723-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/16f8/9128911/e50813c4b5a3/ActaDV-100-8-5723-g001.jpg

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本文引用的文献

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Sexual Distress in Patients with Hidradenitis Suppurativa: A Cross-Sectional Study.化脓性汗腺炎患者的性困扰:一项横断面研究。
J Clin Med. 2019 Apr 18;8(4):532. doi: 10.3390/jcm8040532.
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Pain perception in patients with hidradenitis suppurativa.化脓性汗腺炎患者的疼痛感知
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Quality of life and sexual health in patients with hidradenitis suppurativa.化脓性汗腺炎患者的生活质量与性健康
五种慢性皮肤病自我污名化的预测因素及机制:一项系统综述
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Patient Perspectives on Hidradenitis Suppurativa-induced Scarring and Laser Therapy.化脓性汗腺炎所致瘢痕及激光治疗的患者观点
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Quality-of-Life Endpoints in Women of Childbearing Age with Hidradenitis Suppurativa: A Tertiary-Care-Centre-Based Study.育龄期化脓性汗腺炎女性的生活质量终点:一项基于三级医疗中心的研究。
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Burden of Hidradenitis Suppurativa: A Systematic Literature Review of Patient Reported Outcomes.化脓性汗腺炎的负担:患者报告结局的系统文献综述
Dermatol Ther (Heidelb). 2024 Jan;14(1):83-98. doi: 10.1007/s13555-023-01085-w. Epub 2024 Jan 6.
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Patient reported outcome measures (PROMS) for body image in dermatology: A systematic review.皮肤科中关于身体形象的患者报告结局指标(PROMS):一项系统综述。
Skin Health Dis. 2022 Sep 14;2(4):e167. doi: 10.1002/ski2.167. eCollection 2022 Dec.
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Relationship Disturbances in Hidradenitis Suppurativa: A Patient Perspective.化脓性汗腺炎中的关系障碍:患者视角
Skin Appendage Disord. 2022 Nov;8(6):448-453. doi: 10.1159/000525131. Epub 2022 Jun 24.
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Internalized skin bias: validation study to explore the impact of the internalization of social stigma on those with hidradenitis suppurativa.内在皮肤偏见:一项验证性研究,旨在探讨社会污名内化对化脓性汗腺炎患者的影响。
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Gender differences in sexual health impairment in hidradenitis suppurativa: A systematic review.化脓性汗腺炎患者性健康损害的性别差异:一项系统综述。
Int J Womens Dermatol. 2020 Nov 10;7(3):259-264. doi: 10.1016/j.ijwd.2020.10.010. eCollection 2021 Jun.
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Sex- and Age-Adjusted Population Analysis of Prevalence Estimates for Hidradenitis Suppurativa in the United States.美国化脓性汗腺炎患病率估计值的性别和年龄调整人口分析。
JAMA Dermatol. 2017 Aug 1;153(8):760-764. doi: 10.1001/jamadermatol.2017.0201.