Dellinger Page Amy, Husain Jonelle H, Kvanvig Ashley M
Department of Sociology, Appalachian State University, Boone, NC, USA.
Omega (Westport). 2025 Jun;91(2):932-954. doi: 10.1177/00302228221145798. Epub 2022 Dec 12.
End-of-life doulas (EOLDs) are a growing population of care providers who focus on the wishes of the dying person in order to cultivate an environment of comfort, peace, and support from the point of terminal diagnosis, during the dying process, and following death. The purpose of this study was to document the time commitment of EOLDs to dying persons and their loved ones during the dying process, as well as their experiences navigating family dynamics working towards increased acceptance of death. A mixed-methods approach was utilized to gather data on EOLDs, consisting of a quantitative survey with 618 respondents and subsequent qualitative interviews conducted with 39 participants. Results indicated that the amount of time spent with dying persons and their loved ones varies widely and often depends on when the EOLD is contracted regarding services. Factors that impede and lead to great acceptance of death are discussed as well as the role of EOLDs in navigating family dynamics.
临终关怀护工(EOLDs)是一个不断壮大的护理人员群体,他们关注濒死者的意愿,以便从终末期诊断之时起,在濒死过程中以及死后营造一个舒适、安宁和支持性的环境。本研究的目的是记录临终关怀护工在濒死过程中对濒死者及其亲人投入的时间,以及他们在应对家庭动态以促进对死亡的更多接纳方面的经历。采用了混合方法来收集关于临终关怀护工的数据,包括对618名受访者进行的定量调查以及随后对39名参与者进行的定性访谈。结果表明,与濒死者及其亲人相处的时间差异很大,而且通常取决于临终关怀护工何时签订服务合同。文中讨论了阻碍和促成对死亡的更多接纳的因素,以及临终关怀护工在应对家庭动态方面的作用。