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印度的临终关怀:综述

Hospice care in India: A review.

作者信息

Shukla Rushikesh, Singh Nihaal, Acharya Sourya, Shukla Samarth

机构信息

Department of Medicine, Jawaharlal Nehru Medical College, DMIMS (DU), Sawangi, Wardha, Maharashtra, India.

Department of Pathology, Jawaharlal Nehru Medical College, DMIMS (DU), Sawangi, Wardha, Maharashtra, India.

出版信息

J Family Med Prim Care. 2022 Sep;11(9):4987-4990. doi: 10.4103/jfmpc.jfmpc_2265_21. Epub 2022 Oct 14.

Abstract

Palliative care is the need of the hour, especially in a country like India where the number of terminally ill patients has always been a concern, and with projections showing this number to only go up and increase exponentially, it is much more important that we now shift our focus to providing quality hospice care to the ones that are in need of it. In this article, the authors start out by defining Palliative care and hospice care, all the while maintaining the distinct features of them both. Once the foundation is set for the same, we dive into the history of palliative care in this country and how it has evolved over the years. We then move on to the present scenario of hospice care in India and try to look at it through a more contemporary lens. Further, we discuss the impact of some diseases that most adversely affect individuals and require end-of-life care in its more advanced stages. These include, but are not limited to, end-stage cancer, multidrug resistant (MDR)-tuberculosis and Human immunodeficiency virus-associated acquired immune deficiency syndrome (HIV-AIDS). We then move on to discuss the importance of academic interventions to strengthen the role of hospice care in the India and how research and education can help improve the condition of end-of-life care in all domains. We finally talk about how we can move forward and what positive changes we can bring about in order to make inroads into better and more sustainable hospice care in the Indian context. We hope that our work will cause healthcare professionals, and other people alike to better understand the role of hospice care in their own lives and livelihoods.

摘要

姑息治疗是当务之急,尤其是在像印度这样的国家,绝症患者的数量一直令人担忧,而且预测显示这一数字只会上升并呈指数级增长,因此我们现在将重点转移到为有需要的人提供高质量的临终关怀就显得更为重要。在本文中,作者首先对姑息治疗和临终关怀进行了定义,同时保留了它们各自的显著特征。一旦为此奠定了基础,我们便深入探讨该国姑息治疗的历史以及它多年来的发展历程。接着,我们转向印度临终关怀的现状,并尝试从更现代的视角去审视它。此外,我们讨论了一些对个人影响最为不利且在晚期需要临终关怀的疾病。这些疾病包括但不限于晚期癌症、耐多药结核病以及人类免疫缺陷病毒相关获得性免疫缺陷综合征(艾滋病毒-艾滋病)。然后,我们继续讨论学术干预对于加强印度临终关怀作用的重要性,以及研究和教育如何有助于改善临终关怀在各个领域的状况。我们最后探讨如何在印度的背景下向前发展以及可以带来哪些积极变化,以便在更好且更可持续的临终关怀方面取得进展。我们希望我们的工作能让医疗保健专业人员以及其他人士更好地理解临终关怀在他们自己生活和生计中的作用。

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本文引用的文献

1
Felt Needs of Cancer Palliative Care Professionals Working in India: A Qualitative Study.
Indian J Palliat Care. 2021 Oct-Dec;27(4):544-551. doi: 10.25259/IJPC_125_21. Epub 2021 Sep 8.
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BMC Palliat Care. 2021 May 17;20(1):70. doi: 10.1186/s12904-021-00757-8.
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