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在新冠疫情期间,为一个非裔美国家庭提供居家护理以管理阿尔茨海默病性痴呆症。

Managing Alzheimer's Dementia with Homecare in an African American Family During the COVID Pandemic.

作者信息

Eversley Rani, Favila Wendy, Jenkins Sharon Rae, Godwin Makula, Pedrosa Maria

机构信息

Wright Institute of Berkeley, Berkeley, CA, USA.

University of North Texas, Denton, TX, USA.

出版信息

Gerontol Geriatr Med. 2022 Dec 6;8:23337214221129736. doi: 10.1177/23337214221129736. eCollection 2022 Jan-Dec.

Abstract

In the US, over 95 million people have been infected with COVID and over 1 million have died. 10% of Californians are infected with COVID with higher rates reported among Latinx, Pacific Islanders, and low-income people. Higher death rates have been reported among African Americans. People living with Alzheimer's Disease (AD) are also more likely to be infected with COVID. African Americans with AD have three times the COVID rate of Whites. Homecare workers who care for moderate to severe AD in home and community settings are frontline essential workers who manage complex AD-related problems like incontinence. Little is known about communication and problem-solving processes between homecare workers and families of people with AD to manage continence at home. This report describes the challenges facing homecare workers illustrated by an African American family caring for a relative with advanced AD during pandemic.

摘要

在美国,超过9500万人感染了新冠病毒,超过100万人死亡。10%的加利福尼亚人感染了新冠病毒,拉丁裔、太平洋岛民和低收入人群的感染率更高。非裔美国人的死亡率更高。患有阿尔茨海默病(AD)的人也更容易感染新冠病毒。患有AD的非裔美国人感染新冠病毒的几率是白人的三倍。在家庭和社区环境中照顾中度至重度AD患者的家庭护理人员是一线关键工作者,他们要处理诸如大小便失禁等与AD相关的复杂问题。对于家庭护理人员与AD患者家属之间在家中管理大小便失禁的沟通和解决问题的过程,我们知之甚少。本报告描述了一个非裔美国家庭在疫情期间照顾患有晚期AD的亲属所面临的挑战,以此说明家庭护理人员面临的挑战。

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本文引用的文献

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2022 Alzheimer's disease facts and figures.2022 年阿尔茨海默病事实和数据。
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