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本文引用的文献

1
2022 Alzheimer's disease facts and figures.2022 年阿尔茨海默病事实和数据。
Alzheimers Dement. 2022 Apr;18(4):700-789. doi: 10.1002/alz.12638. Epub 2022 Mar 14.
2
Home-Care Nurses' Experiences of Caring for Older Adults With Type 2 Diabetes Mellitus and Urinary Incontinence: An Interpretive Description Study.居家护理护士照顾2型糖尿病合并尿失禁老年人的经验:一项诠释性描述研究
SAGE Open Nurs. 2021 Jun 8;7:23779608211020977. doi: 10.1177/23779608211020977. eCollection 2021 Jan-Dec.
3
Racial/Ethnic Disparities In COVID-19 Exposure Risk, Testing, And Cases At The Subcounty Level In California.加利福尼亚州各县级以下地区在新冠病毒暴露风险、检测和病例方面的种族/民族差异。
Health Aff (Millwood). 2021 Jun;40(6):870-878. doi: 10.1377/hlthaff.2021.00098. Epub 2021 May 12.
4
COVID-19 and dementia: Analyses of risk, disparity, and outcomes from electronic health records in the US.COVID-19 与痴呆:来自美国电子健康记录的风险、差异和结果分析。
Alzheimers Dement. 2021 Aug;17(8):1297-1306. doi: 10.1002/alz.12296. Epub 2021 Feb 9.
5
Nursing Home Care in Crisis in the Wake of COVID-19.新冠疫情后养老院护理陷入危机
JAMA. 2020 Jul 7;324(1):23-24. doi: 10.1001/jama.2020.8524.
6
Conceptual Framework to Guide Intervention Research Across the Trajectory of Dementia Caregiving.指导痴呆照护全过程干预研究的概念框架
Gerontologist. 2020 Feb 14;60(Suppl 1):S29-S40. doi: 10.1093/geront/gnz157.
7
Gentle Physical Activity Intervention Led by Caregivers in a Medicaid Home Care Program: Do Outcomes Differ Between Family and Nonfamily Caregiving Dyads?医疗补助家庭护理项目中由照护者主导的温和身体活动干预:家庭与非家庭照护二元组的结果有差异吗?
Innov Aging. 2019 Sep 4;3(3):igz034. doi: 10.1093/geroni/igz034. eCollection 2019 Jul.
8
Inequalities in dementia incidence between six racial and ethnic groups over 14 years.14年间六个种族和民族群体在痴呆症发病率上的不平等。
Alzheimers Dement. 2016 Mar;12(3):216-24. doi: 10.1016/j.jalz.2015.12.007. Epub 2016 Feb 11.
9
A systematic review of ethnicity and pathways to care in dementia.一项关于痴呆症种族和治疗途径的系统评价。
Int J Geriatr Psychiatry. 2011 Jan;26(1):12-20. doi: 10.1002/gps.2484.
10
Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet?评论:制定具有文化敏感性的痴呆症照顾者干预措施:我们做到了吗?
Am J Alzheimers Dis Other Demen. 2010 Aug;25(5):389-406. doi: 10.1177/1533317510370957. Epub 2010 May 27.

在新冠疫情期间,为一个非裔美国家庭提供居家护理以管理阿尔茨海默病性痴呆症。

Managing Alzheimer's Dementia with Homecare in an African American Family During the COVID Pandemic.

作者信息

Eversley Rani, Favila Wendy, Jenkins Sharon Rae, Godwin Makula, Pedrosa Maria

机构信息

Wright Institute of Berkeley, Berkeley, CA, USA.

University of North Texas, Denton, TX, USA.

出版信息

Gerontol Geriatr Med. 2022 Dec 6;8:23337214221129736. doi: 10.1177/23337214221129736. eCollection 2022 Jan-Dec.

DOI:10.1177/23337214221129736
PMID:36506789
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9729713/
Abstract

In the US, over 95 million people have been infected with COVID and over 1 million have died. 10% of Californians are infected with COVID with higher rates reported among Latinx, Pacific Islanders, and low-income people. Higher death rates have been reported among African Americans. People living with Alzheimer's Disease (AD) are also more likely to be infected with COVID. African Americans with AD have three times the COVID rate of Whites. Homecare workers who care for moderate to severe AD in home and community settings are frontline essential workers who manage complex AD-related problems like incontinence. Little is known about communication and problem-solving processes between homecare workers and families of people with AD to manage continence at home. This report describes the challenges facing homecare workers illustrated by an African American family caring for a relative with advanced AD during pandemic.

摘要

在美国,超过9500万人感染了新冠病毒,超过100万人死亡。10%的加利福尼亚人感染了新冠病毒,拉丁裔、太平洋岛民和低收入人群的感染率更高。非裔美国人的死亡率更高。患有阿尔茨海默病(AD)的人也更容易感染新冠病毒。患有AD的非裔美国人感染新冠病毒的几率是白人的三倍。在家庭和社区环境中照顾中度至重度AD患者的家庭护理人员是一线关键工作者,他们要处理诸如大小便失禁等与AD相关的复杂问题。对于家庭护理人员与AD患者家属之间在家中管理大小便失禁的沟通和解决问题的过程,我们知之甚少。本报告描述了一个非裔美国家庭在疫情期间照顾患有晚期AD的亲属所面临的挑战,以此说明家庭护理人员面临的挑战。