• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

家长的疫情压力、父母参与度与自闭症儿童的家庭生活质量。

Parents' pandemic stress, parental involvement, and family quality of life for children with autism.

机构信息

School of Philosophy and Social Development, Shandong University, Jinan, China.

出版信息

Front Public Health. 2022 Dec 1;10:1061796. doi: 10.3389/fpubh.2022.1061796. eCollection 2022.

DOI:10.3389/fpubh.2022.1061796
PMID:36530705
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9751346/
Abstract

BACKGROUND

Research has shown that parents of children with autism spectrum disorder (ASD) suffered high levels of stress during the COVID-19 pandemic and faced poor family quality of life (FQOL). However, little is known about the inherent dynamic interaction between pandemic stress and FQOL, especially in the Chinese cultural context.

AIMS

This study provides preliminary evidence by examining the relationships among pandemic stress, parental involvement, and FQOL for children with autism in mainland China.

METHOD

A total of 709 parents of children with autism completed measures of FQOL, parental involvement, and pandemic stress. Structural equation modeling was employed to examine the interrelations among these variables.

RESULTS

Pandemic stress has direct effect and indirect effect mediated by parental involvement on FQOL. Two dimensions of pandemic stress had a direct effect on FQOL (β1 = 0.11; β2 = -0.55) and three dimensions had an indirect effect on FQOL through parental involvement (β1 = -0.097; β2 = 0.257; β3 = 0.114).

CONCLUSION

Stress related to the COVID-19 pandemic affects family quality of life for children with autism in complex ways. Policies may be developed to enhance parental in the anti-epidemic victory and alleviate negative caused by the pandemic.

摘要

背景

研究表明,自闭症谱系障碍(ASD)儿童的父母在 COVID-19 大流行期间承受着高度的压力,面临着较差的家庭生活质量(FQOL)。然而,在疫情压力和 FQOL 之间的内在动态相互作用方面,人们知之甚少,特别是在中文化背景下。

目的

本研究通过考察中国大陆自闭症儿童的疫情压力、父母参与度和 FQOL 之间的关系,提供了初步证据。

方法

共有 709 名自闭症儿童的家长完成了 FQOL、父母参与度和疫情压力的测量。结构方程模型被用来检验这些变量之间的相互关系。

结果

疫情压力对 FQOL 有直接影响和间接影响,通过父母参与度来中介。疫情压力的两个维度对 FQOL 有直接影响(β1 = 0.11;β2 = -0.55),三个维度通过父母参与度对 FQOL 有间接影响(β1 = -0.097;β2 = 0.257;β3 = 0.114)。

结论

与 COVID-19 大流行相关的压力以复杂的方式影响着自闭症儿童的家庭生活质量。可能会制定政策来增强父母在抗疫胜利中的参与度,并减轻疫情带来的负面影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/1a02e2f6c2eb/fpubh-10-1061796-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/1191b0fd6068/fpubh-10-1061796-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/a5009acb9115/fpubh-10-1061796-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/2fa9cb910e62/fpubh-10-1061796-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/1a02e2f6c2eb/fpubh-10-1061796-g0004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/1191b0fd6068/fpubh-10-1061796-g0001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/a5009acb9115/fpubh-10-1061796-g0002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/2fa9cb910e62/fpubh-10-1061796-g0003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c58b/9751346/1a02e2f6c2eb/fpubh-10-1061796-g0004.jpg

相似文献

1
Parents' pandemic stress, parental involvement, and family quality of life for children with autism.家长的疫情压力、父母参与度与自闭症儿童的家庭生活质量。
Front Public Health. 2022 Dec 1;10:1061796. doi: 10.3389/fpubh.2022.1061796. eCollection 2022.
2
Parental stress, involvement, and family quality of life in mothers and fathers of children with autism spectrum disorder in mainland China: A dyadic analysis.中国大陆自闭症谱系障碍儿童的父母压力、参与度和家庭生活质量:一项对偶分析。
Res Dev Disabil. 2020 Dec;107:103791. doi: 10.1016/j.ridd.2020.103791. Epub 2020 Oct 19.
3
Parental stress, family quality of life, and family-teacher partnerships: Families of children with autism spectrum disorder.父母压力、家庭生活质量和家校合作:自闭症谱系障碍儿童的家庭。
Res Dev Disabil. 2017 Nov;70:152-162. doi: 10.1016/j.ridd.2017.08.013. Epub 2017 Sep 21.
4
Examining the relationships of parental stress, family support and family quality of life: A structural equation modeling approach.考察父母压力、家庭支持和家庭生活质量之间的关系:结构方程建模方法。
Res Dev Disabil. 2020 Jan;96:103523. doi: 10.1016/j.ridd.2019.103523. Epub 2019 Nov 27.
5
Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?智障儿童父母的家庭生活质量:心理压力和父母参与重要吗?
J Intellect Disabil. 2025 Jun;29(2):331-348. doi: 10.1177/17446295241254624. Epub 2024 May 21.
6
Parental self-efficacy and family quality of life in parents of children with autism spectrum disorder in China: The possible mediating role of social support.中国自闭症谱系障碍儿童父母的父母自我效能感和家庭生活质量:社会支持的可能中介作用。
J Pediatr Nurs. 2022 Mar-Apr;63:159-167. doi: 10.1016/j.pedn.2021.10.014. Epub 2021 Nov 12.
7
Resilience, and positive parenting in parents of children with syndromic autism and intellectual disability. Evidence from the impact of the COVID-19 pandemic on family's quality of life and parent-child relationships.自闭症谱系障碍和智力残疾儿童父母的韧性和积极养育。COVID-19 大流行对家庭生活质量和亲子关系影响的证据。
Autism Res. 2022 Dec;15(12):2381-2398. doi: 10.1002/aur.2825. Epub 2022 Oct 4.
8
Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia.在 COVID-19 大流行期间,沙特阿拉伯的自闭症谱系障碍(ASD)儿童在家中日常作息改变,导致父母的压力和情绪健康受到影响。
Res Dev Disabil. 2021 Jan;108:103822. doi: 10.1016/j.ridd.2020.103822. Epub 2020 Nov 30.
9
The importance of parenting self-efficacy and social support for family quality of life in children newly diagnosed with autism spectrum disorder: A one-year follow-up study.新诊断为自闭症谱系障碍儿童的父母效能感和社会支持对家庭生活质量的重要性:一项为期一年的随访研究。
Autism Res. 2024 Jan;17(1):148-161. doi: 10.1002/aur.3061. Epub 2023 Nov 21.
10
Measuring parental stress, illness perceptions, coping and quality of life in families of children newly diagnosed with autism spectrum disorder.测量新诊断为自闭症谱系障碍儿童家庭中父母的压力、疾病认知、应对方式及生活质量。
BJPsych Open. 2023 May 18;9(3):e84. doi: 10.1192/bjo.2023.55.

引用本文的文献

1
What happened to parents' views of school success for autistic children during the COVID-19 pandemic?在新冠疫情期间,自闭症儿童家长对孩子学业成就的看法发生了怎样的变化?
Front Psychiatry. 2023 Aug 24;14:1211041. doi: 10.3389/fpsyt.2023.1211041. eCollection 2023.

本文引用的文献

1
Parent-teacher interactions, family stress, well-being, and parental depression as contributing factors to parental involvement mechanisms in education of children with autism.家长与教师的互动、家庭压力、幸福感以及父母抑郁作为自闭症儿童教育中家长参与机制的促成因素。
Int J Dev Disabil. 2021 Mar 9;68(6):838-849. doi: 10.1080/20473869.2021.1896962. eCollection 2022.
2
Associations of youth mental health, parental psychological distress, and family relationships during the COVID-19 outbreak in China.中国新冠肺炎疫情期间青少年心理健康、父母心理困扰和家庭关系的关联。
BMC Psychiatry. 2022 Apr 19;22(1):275. doi: 10.1186/s12888-022-03938-8.
3
Parenting in a Pandemic: Parental stress, anxiety and depression among parents during the government-initiated physical distancing measures following the first wave of COVID-19.
大流行时期的育儿:在政府首次实施 COVID-19 疫情期间的身体疏远措施后,父母的压力、焦虑和抑郁。
Stress Health. 2022 Oct;38(4):637-652. doi: 10.1002/smi.3120. Epub 2021 Dec 17.
4
Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review.自闭症谱系障碍儿童或青少年家长的生活质量及参与干预情况:一项系统综述
J Pers Med. 2021 Sep 8;11(9):894. doi: 10.3390/jpm11090894.
5
Prenatal maternal stress during the COVID-19 pandemic and infant regulatory capacity at 3 months: A longitudinal study.新冠疫情期间产前母亲压力与3个月大婴儿的调节能力:一项纵向研究。
Dev Psychopathol. 2023 Feb;35(1):35-43. doi: 10.1017/S0954579421000766. Epub 2021 Jul 2.
6
Direct, Indirect, and Buffering Effect of Social Support on Parental Involvement Among Chinese Parents of Children with Autism Spectrum Disorders.社会支持对自闭症谱系障碍儿童中国家长参与的直接、间接和缓冲作用。
J Autism Dev Disord. 2022 Jul;52(7):2911-2923. doi: 10.1007/s10803-021-05170-x. Epub 2021 Jun 29.
7
Quality of Life Changes during the COVID-19 Pandemic for Caregivers of Children with ADHD and/or ASD.COVID-19 大流行期间 ADHD 和/或 ASD 儿童照顾者的生活质量变化。
Int J Environ Res Public Health. 2021 Apr 1;18(7):3667. doi: 10.3390/ijerph18073667.
8
Prenatal stress, health, and health behaviours during the COVID-19 pandemic: An international survey.COVID-19 大流行期间的产前压力、健康和健康行为:一项国际调查。
Women Birth. 2022 May;35(3):272-279. doi: 10.1016/j.wombi.2021.03.007. Epub 2021 Mar 19.
9
While quarantined: An online parent education and training model for families of children with autism in China.隔离期间:中国自闭症儿童家庭的在线家长教育和培训模式。
Res Dev Disabil. 2021 Feb;109:103851. doi: 10.1016/j.ridd.2020.103851. Epub 2021 Jan 16.
10
The Influence of Factors Such as Parenting Stress and Social Support on the State Anxiety in Parents of Special Needs Children During the COVID-19 Epidemic.新冠疫情期间育儿压力和社会支持等因素对特殊需求儿童家长状态焦虑的影响
Front Psychol. 2020 Dec 10;11:565393. doi: 10.3389/fpsyg.2020.565393. eCollection 2020.