Cheng Sanyin, Li Jiaqi, Li Qiaoqiao, Li Xuxu, Luo Yan
School of Philosophy and Social Development, Shandong University, China.
J Intellect Disabil. 2025 Jun;29(2):331-348. doi: 10.1177/17446295241254624. Epub 2024 May 21.
The psychological stress of parents and improving family quality of life (FQoL) are continuing concerns for families of children with intellectual disability. We need to identify further ways to reduce their stress and improve their FQoL in China. Examine the interrelations between psychological stress, parental involvement, and FQoL for parents with intellectual disability in mainland China. Four hundred sixty seven parents of children with intellectual disability completed instruments measuring variables. Structural equation modelling (SEM) was employed to examine the interrelations. Psychological stress, directly and indirectly, influenced parental involvement in FQoL. Physical and mental response (PMR) and risk awareness (RA) had a positive direct effect on FQoL, and optimistic hope (OH) had a negative effect on FQoL. Psychological stress affects FQoL of parents with children with intellectual disability in complex ways. Policies should be developed to help parents with children with disability decrease stress and develop scientific parental involvement.
智障儿童家庭中,父母的心理压力以及家庭生活质量的改善一直是备受关注的问题。在中国,我们需要找到更多方法来减轻他们的压力并提高其家庭生活质量。研究中国大陆智障儿童家长的心理压力、家长参与度和家庭生活质量之间的相互关系。467名智障儿童的家长完成了测量相关变量的问卷。采用结构方程模型(SEM)来研究这些相互关系。心理压力直接或间接地影响家长对家庭生活质量的参与度。身心反应(PMR)和风险意识(RA)对家庭生活质量有正向直接影响,而乐观希望(OH)对家庭生活质量有负向影响。心理压力以复杂的方式影响着智障儿童家长的家庭生活质量。应制定相关政策,帮助残疾儿童家长减轻压力并形成科学的家长参与度。