系统评价与慢性病患者的家庭照顾者的希望相关的因素。

Systematic review of factors associated with hope in family carers of persons living with chronic illness.

机构信息

Faculty of Nursing, University of Alberta, Edmonton, AB, Canada.

Division of Palliative Care Medicine, University of Alberta, Health Services Centre, Edmonton, AB, Canada.

出版信息

J Adv Nurs. 2021 Aug;77(8):3343-3360. doi: 10.1111/jan.14858. Epub 2021 Apr 20.

DOI:10.1111/jan.14858

PMID:33876845

Abstract

AIMS

To identify factors associated with hope in family carers of persons living with chronic illness.

DESIGN

A systematic review of quantitative and mixed method studies on hope in carers of persons living with chronic illness.

DATA SOURCES

Five electronic databases (Medline, Cumulative Index to Nursing and Allied Health Literature, Web of Science, ProQuest Dissertations and PsycINFO) were searched from inception to 13 July 2020.

REVIEW METHODS

Inclusion criteria were the following: (a) study population of adult (18 years of age and older) carers of persons living with chronic illness, (b) hope was measured as a variable, (c) reported factors associated with hope, (d) employed either quantitative or mixed methods design, (e) written in English and (f) was published in peer reviewed journals. All included studies were evaluated for quality using the Mixed Method Appraisal Tool.

RESULTS

Twenty-six studies were included in the systematic review. Quality of life, physical and mental health, life satisfaction and the hope of care recipients were found to be positively associated with hope. Carer's coping increased (self-efficacy and caregiver preparedness) as hope increased with a decrease in maladaptive coping strategies. Anxiety, depression, distress, grief and guilt were negatively associated with carers' hope. Carers' hope did not appear to be associated with carer or care-recipient demographic variables.

CONCLUSION

Carers' hope appears to be associated with the carers' over all positive health. The factors associated with carers' hope provide potential areas to focus intervention development such as strategies that increase self-efficacy. More research is needed to clarify if factors such as stage of disease and resilience are associated with hope. Research on carers' hope assessment and intervention development should also focus on factors associated with hope.

IMPACT

The findings underscore the need to assess and work with carers of persons living with chronic illness to enhance their hope.

摘要

目的

确定与慢性疾病患者的家庭照顾者的希望相关的因素。

设计

对照顾慢性疾病患者的照顾者的希望进行了系统的综述，包括定量和混合方法研究。

数据来源

从建库到 2020 年 7 月 13 日，检索了 5 个电子数据库（医学文献在线数据库、护理与联合健康文献累积索引、Web of Science、ProQuest 学位论文全文数据库和 PsycINFO）。

审查方法

纳入标准为：（a）研究人群为成年（18 岁及以上）慢性疾病患者的照顾者，（b）希望作为变量进行测量，（c）报告与希望相关的因素，（d）采用定量或混合方法设计，（e）用英语撰写，（f）发表在同行评议的期刊上。所有纳入的研究均使用混合方法评估工具进行质量评估。

结果

系统综述共纳入 26 项研究。研究发现，生活质量、身心健康、生活满意度和照顾对象的希望与希望呈正相关。随着希望的增加，照顾者的应对方式（自我效能感和照顾者准备度）增加，而适应不良的应对策略减少。焦虑、抑郁、痛苦、悲伤和内疚与照顾者的希望呈负相关。照顾者的希望似乎与照顾者或照顾对象的人口统计学变量无关。