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聋盲成人干预措施的综合评价。

Interventions for adults with deafblindness - an integrative review.

机构信息

University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.

Audiological Research Center, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.

出版信息

BMC Health Serv Res. 2022 Dec 30;22(1):1594. doi: 10.1186/s12913-022-08958-4.

DOI:10.1186/s12913-022-08958-4
PMID:36585684
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9801155/
Abstract

PURPOSE

To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65 years) with deafblindness.

MATERIALS AND METHODS

A comprehensive search was conducted in eight databases. An additional manual search was also carried out. A total of 7049 unique references were initially identified, and after screening, 28 original scientific articles were included. The results from these articles were categorized based on limiting consequences of deafblindness: communication, orientation and to move around freely and safely and access to information, as well as to psychological adaptation to deafblindness.

RESULTS

Fourteen of the included articles had their main focus on access to communication, ten on orientation and the ability to move around feely and safely, three on the opportunity to gain access to information, and one related to psychological adaptation to deafblindness. Most articles focused on technical devices, of which one-third were single case studies.

CONCLUSION

There is a limited number of evaluated interventions for people with deafblindness. Most of the existing studies involved one to five participants with deafblindness, and only few studies involved a larger number of participants. More research with a larger number of participants are needed, which could be facilitated by international cooperation between practitioners and researchers.

摘要

目的

编译针对成年失聪失明患者(18-65 岁)的康复干预措施的现有研究。

材料与方法

在八个数据库中进行了全面检索。还进行了额外的手动搜索。最初确定了 7049 个独特的参考资料,经过筛选,纳入了 28 篇原始科学文章。根据失聪失明的限制后果对这些文章的结果进行了分类:沟通、定向和自由安全移动以及获取信息,以及对失聪失明的心理适应。

结果

纳入的 14 篇文章主要关注沟通的机会,10 篇文章关注定向和自由安全移动的能力,3 篇文章关注获取信息的机会,1 篇文章关注对失聪失明的心理适应。大多数文章都集中在技术设备上,其中三分之一是单一案例研究。

结论

针对失聪失明患者的评估干预措施数量有限。大多数现有研究涉及一到五名失聪失明参与者,只有少数研究涉及更多参与者。需要更多有更多参与者的研究,这可以通过从业者和研究人员之间的国际合作来促进。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/575e/9801629/fbebacb228b5/12913_2022_8958_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/575e/9801629/fbebacb228b5/12913_2022_8958_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/575e/9801629/fbebacb228b5/12913_2022_8958_Fig1_HTML.jpg

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本文引用的文献

1
Editorial: Development, Wellbeing, and Lifelong Learning in Individuals With a Dual Sensory Loss.社论:双重感官丧失个体的发展、福祉与终身学习
Front Psychol. 2021 Dec 9;12:790549. doi: 10.3389/fpsyg.2021.790549. eCollection 2021.
2
Informed Consent or Assent Strategies for Research With Individuals With Deafblindness or Dual Sensory Impairment: A Scoping Review.针对聋盲或双重感官障碍个体的研究的知情同意或同意策略:一项范围综述
Arch Rehabil Res Clin Transl. 2021 Feb 22;3(2):100115. doi: 10.1016/j.arrct.2021.100115. eCollection 2021 Jun.
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Device abandonment in deafblindness: a scoping review of the intersection of functionality and usability through the International Classification of Functioning, Disability and Health lens.
失聪失明人群中的设备遗弃问题:通过国际功能、残疾和健康分类的视角,对功能与可用性的交叉点进行的范围综述。
BMJ Open. 2021 Jan 25;11(1):e044873. doi: 10.1136/bmjopen-2020-044873.
4
The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2.2 型 Usher 综合征致聋盲患者的工作与健康体验
Int J Qual Stud Health Well-being. 2020 Dec;15(1):1846671. doi: 10.1080/17482631.2020.1846671.
5
Similarities and Differences in Health, Social Trust, and Financial Situation in People With Usher Syndrome, a Bio-Psychosocial Perspective.从生物心理社会视角看,患有Usher综合征的人群在健康、社会信任和财务状况方面的异同
Front Psychol. 2020 Aug 28;11:1760. doi: 10.3389/fpsyg.2020.01760. eCollection 2020.
6
Life strategies of people with deafblindness due to Usher syndrome type 2a - a qualitative study.2a 型 Usher 综合征致聋盲患者的生活策略——一项定性研究。
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1656790. doi: 10.1080/17482631.2019.1656790.
7
Single screening versus conventional double screening for study selection in systematic reviews: a methodological systematic review.单筛法与传统双筛法在系统评价中用于研究选择的比较:一项方法学系统评价。
BMC Med Res Methodol. 2019 Jun 28;19(1):132. doi: 10.1186/s12874-019-0782-0.
8
The first deaf-blind patient in Russia with Argus II retinal prosthesis system: what he sees and why.俄罗斯首例 Argus II 视网膜假体系统植入的聋哑盲人:他所看到的以及原因。
J Neural Eng. 2019 Apr;16(2):025002. doi: 10.1088/1741-2552/aafc76. Epub 2019 Jan 8.
9
Increasing the autonomy of deafblind individuals through direct access to content broadcasted on digital terrestrial television.通过直接访问数字地面电视广播的内容来提高聋哑盲人的自主性。
Assist Technol. 2020 Sep 2;32(5):268-276. doi: 10.1080/10400435.2018.1543219. Epub 2018 Dec 28.
10
Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome.克服聋盲人士参与研究相关对话的障碍:来自患有尤塞氏综合征患者的建议。
Res Involv Engagem. 2018 Oct 26;4:40. doi: 10.1186/s40900-018-0124-0. eCollection 2018.