Brear Michelle R, Shabangu Pinky N, Hammarberg Karin, Fisher Jane
Global and Women's Health, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.
School of Public Health, University of Witwatersrand, Johannesburg, South Africa.
J Empir Res Hum Res Ethics. 2023 Feb-Apr;18(1-2):24-36. doi: 10.1177/15562646221147811. Epub 2023 Jan 2.
Recognition that structural factors influence participation decisions and have potential to coerce participation, emerged relatively recently in research ethics literature. Empirical evidence to elucidate the nature of "structural" coercion and influence is needed to optimise respect for autonomy through voluntary informed consent. We present findings from ethnographic data about community co-researchers' experiences designing and implementing demographic and health survey consent procedures in participatory health research in Eswatini. Informed by Bourdieu's sociological theory of multiple types of capital/power, our findings detail structural influences on research participation decisions, highlight the inherently power-laden dynamics of consent interactions, and suggest that to be optimally ethical, research ethics principles and practices should consider and account for structural power dynamics.
认识到结构因素会影响参与决策并有可能强制参与,这在研究伦理文献中出现得相对较晚。需要实证证据来阐明“结构性”强制和影响的本质,以便通过自愿知情同意来优化对自主性的尊重。我们展示了来自人种志数据的研究结果,这些数据是关于在斯威士兰参与式健康研究中,社区共同研究者设计和实施人口与健康调查同意程序的经历。受布迪厄关于多种资本/权力类型的社会学理论启发,我们的研究结果详细阐述了对研究参与决策的结构影响,突出了同意互动中固有的充满权力的动态关系,并表明,为了达到最佳伦理标准,研究伦理原则和实践应考虑并顾及结构权力动态关系。