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使世卫组织欧洲区域针对难民和移民健康的参与式健康研究方法常态化:一次范式转变。

Normalising participatory health research approaches in the WHO European region for refugee and migrant health: a paradigm shift.

作者信息

MacFarlane Anne, Huschke Susann, Marques Maria J, Gama Ana, Kinaan Walaa, Hassan Ahmed, Papyan Anna, Phelan Helen, Severoni Santino, Kumar Bernadette, Dias Sonia

机构信息

WHO Collaborating Centre on Participatory Health Research with Refugees and Migrants, School of Medicine and Health Research Institute, University of Limerick, Limerick, Ireland.

NOVA National School of Public Health, Public Health Research Centre, CHRC, REAL, NOVA University Lisbon, Lisbon, Portugal.

出版信息

Lancet Reg Health Eur. 2024 May 28;41:100837. doi: 10.1016/j.lanepe.2024.100837. eCollection 2024 Jun.

DOI:10.1016/j.lanepe.2024.100837
PMID:39119099
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11306213/
Abstract

While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt 'business as usual', we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.

摘要

虽然在许多国家,人们参与健康研究越来越成为受到鼓励的常态,但难民和移民参与有关其健康状况的研究却很少见。在此,我们呼吁在难民和移民健康领域实现范式转变,使参与式健康研究成为常规做法,即常态化。为了打破“照旧行事”的局面,我们综合了关于有意义的研究伙伴关系和包容性参与空间特征的证据。我们列举了一些去殖民化的、符合文化特点的方法示例,这些方法可用于重新构想和振兴研究实践,因为它们鼓励批判性反思和权力共享:使用音乐和歌唱的基于艺术的研究、参与式学习与行动研究、摄影声音法以及共同设计(创意生成)工作坊。我们思考了不进行这种范式转变的后果。最后,我们针对具体的结构和政策变革提出建议,并提出一些实证研究问题,这些对于推动该领域参与式健康研究的常态化至关重要。

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Framework for refugee and migrant health research in the WHO European Region.《世卫组织欧洲区域难民和移民健康研究框架》。
Trop Med Int Health. 2023 Feb;28(2):90-97. doi: 10.1111/tmi.13845. Epub 2023 Jan 23.
3
Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research.我们是否忽略了某些人?对有参与式研究经验的人对公众参与理解的批判性话语分析。
PLoS One. 2022 Sep 2;17(9):e0273727. doi: 10.1371/journal.pone.0273727. eCollection 2022.
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Systems and subversion: A review of structural violence and im/migrant health.系统与颠覆:结构性暴力与移民健康研究述评。
Curr Opin Psychol. 2022 Oct;47:101431. doi: 10.1016/j.copsyc.2022.101431. Epub 2022 Jul 31.
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Health-care provision for displaced populations arriving from Ukraine.为从乌克兰抵达的流离失所人群提供医疗保健服务。
Lancet Infect Dis. 2022 Jun;22(6):757-759. doi: 10.1016/S1473-3099(22)00225-0. Epub 2022 Apr 8.
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