MacFarlane Anne, Huschke Susann, Marques Maria J, Gama Ana, Kinaan Walaa, Hassan Ahmed, Papyan Anna, Phelan Helen, Severoni Santino, Kumar Bernadette, Dias Sonia
WHO Collaborating Centre on Participatory Health Research with Refugees and Migrants, School of Medicine and Health Research Institute, University of Limerick, Limerick, Ireland.
NOVA National School of Public Health, Public Health Research Centre, CHRC, REAL, NOVA University Lisbon, Lisbon, Portugal.
Lancet Reg Health Eur. 2024 May 28;41:100837. doi: 10.1016/j.lanepe.2024.100837. eCollection 2024 Jun.
While people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt 'business as usual', we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.
虽然在许多国家,人们参与健康研究越来越成为受到鼓励的常态,但难民和移民参与有关其健康状况的研究却很少见。在此,我们呼吁在难民和移民健康领域实现范式转变,使参与式健康研究成为常规做法,即常态化。为了打破“照旧行事”的局面,我们综合了关于有意义的研究伙伴关系和包容性参与空间特征的证据。我们列举了一些去殖民化的、符合文化特点的方法示例,这些方法可用于重新构想和振兴研究实践,因为它们鼓励批判性反思和权力共享:使用音乐和歌唱的基于艺术的研究、参与式学习与行动研究、摄影声音法以及共同设计(创意生成)工作坊。我们思考了不进行这种范式转变的后果。最后,我们针对具体的结构和政策变革提出建议,并提出一些实证研究问题,这些对于推动该领域参与式健康研究的常态化至关重要。