Author Affiliations Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Kjeller, Norway (Dr Staats); Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway (Dr Grov); and Department of Health and Caring Sciences, Faculty of Health and Social Sciences, Western Norway University of Applied Sciences, Bergen, Norway; Norwegian Research Center for Women's Health, Oslo University Hospital, Rikshospitalet, Nydalen, Oslo, Norway (Dr Tranvåg).
ANS Adv Nurs Sci. 2024;47(2):188-201. doi: 10.1097/ANS.0000000000000474. Epub 2022 Dec 29.
Previously, we described the development of the first part of the framework of Patient and Informal Caregiver Participation in Research (PAICPAIR part 1) and how it was implemented in the empirical study Dying With Dignity . Currently, we present our choices and experiences gained in PAICPAIR part 2, highlighting how PAICPAIR guided us as a modifiable and adaptable framework, with a particular emphasis on identifying and meeting the individual needs of our vulnerable coresearchers. This framework can be used as a methodological approach and study design in future research and inspire researchers to include patients receiving palliative care and informal caregivers-as coresearchers.
此前，我们描述了研究中患者和非正式照护者参与（PAICPAIR 第一部分）框架的第一部分的开发以及它如何在实证研究《有尊严地死去》中实施。目前，我们介绍了在 PAICPAIR 第二部分中所做的选择和获得的经验，重点介绍了 PAICPAIR 如何作为一个可修改和可适应的框架指导我们，特别强调了识别和满足我们弱势核心研究人员的个体需求。该框架可用作未来研究的方法学方法和研究设计，并激励研究人员将接受姑息治疗的患者和非正式照护者纳入核心研究人员。
