Zaleta Alexandra K, Miller Melissa F, Fortune Erica E, Olson Julie S, Rogers Kimberly Papay, Hendershot Kelly, Ash-Lee Susan
Cancer Support Community, Research and Training Institute, Philadelphia, Pennsylvania, USA.
Cancer Support Community, Washington, District of Columbia, USA.
Psychooncology. 2023 Mar;32(3):418-428. doi: 10.1002/pon.6092. Epub 2023 Feb 7.
Given the substantial demands of cancer caregiving, practical and psychometrically sound tools to evaluate distress among cancer caregivers are needed. CancerSupportSource -Caregiver is a distress screening, referral, and support program designed to identify the unmet needs of cancer caregivers and link caregivers to desired resources and support. This study refined and finalized the CancerSupportSource-Caregiver screening measure and examined its psychometric properties.
Using an analytic sample of 400 caregivers to people with cancer, we first performed item reduction by assessing exploratory factor analysis, external/internal item quality, and judging theoretical and practical implications of items. Confirmatory factor analysis along with reliability and validity analyses were then conducted to corroborate dimensionality and psychometric properties of the final measure. Nonparametric receiver operating characteristic curve analyses determined scoring thresholds for depression and anxiety risk subscales.
Scale refinement resulted in an 18-item measure plus one screening item assessing tobacco and substance use. Items represented five domains of caregiver concerns: emotional well-being, patient well-being, caregiving tasks, finances, and healthy lifestyle. Our analyses showed strong internal consistency and test-retest reliability, a replicable factor structure, and adequate convergent, discriminant, and known groups validity. Sensitivity of 2-item depression and 2-item anxiety risk subscales were 0.95 and 0.87, respectively.
CancerSupportSource-Caregiver is a reliable and valid multidimensional measure of caregiver distress that also screens for risk for clinically significant depression and anxiety. It can be implemented within a distress screening, referral, and follow-up program to rapidly assess caregivers' unmet needs and enhance caregiver well-being across the care continuum.
鉴于癌症护理需求巨大，需要实用且心理测量学上可靠的工具来评估癌症护理者的困扰程度。癌症支持源 - 护理者是一项困扰筛查、转诊和支持计划，旨在识别癌症护理者未得到满足的需求，并将护理者与所需资源和支持联系起来。本研究对癌症支持源 - 护理者筛查量表进行了完善和定稿，并检验了其心理测量学特性。
我们以400名癌症患者的护理者为分析样本，首先通过评估探索性因素分析、外部/内部项目质量以及判断项目的理论和实际意义来进行项目缩减。然后进行验证性因素分析以及信效度分析，以证实最终量表的维度和心理测量学特性。非参数接受者操作特征曲线分析确定了抑郁和焦虑风险子量表的评分阈值。
量表完善后得到一个包含18个项目的量表以及一个评估烟草和物质使用情况的筛查项目。这些项目代表了护理者关注的五个领域：情绪健康、患者健康、护理任务、财务状况和健康生活方式。我们的分析显示出很强的内部一致性和重测信度、可重复的因素结构以及足够的聚合效度、区分效度和已知群体效度。2项抑郁风险子量表和2项焦虑风险子量表的敏感性分别为0.95和0.87。
癌症支持源 - 护理者是一种可靠且有效的多维护理者困扰测量工具，还能筛查具有临床意义的抑郁和焦虑风险。它可在困扰筛查、转诊和随访计划中实施，以快速评估护理者未得到满足的需求，并在整个护理过程中提高护理者的幸福感。
