School of Kinesiology, The University of British Columbia, Vancouver, British Columbia, Canada
School of Kinesiology, The University of British Columbia, Vancouver, British Columbia, Canada.
Med Humanit. 2023 Sep;49(3):436-446. doi: 10.1136/medhum-2021-012351. Epub 2023 Jan 12.
Person-centred care (PCC) has been touted as a promising paradigm for improving patients' experiences and outcomes, and the overall therapeutic environment for a range of health conditions, including obesity. While this approach represents an important shift away from a paternalistic and disease-focused paradigm, we argue that PCC must be explicitly informed by a social justice lens to achieve optimal conditions for health and well-being. We suggest that existing studies on PCC for obesity only go so far in achieving social justice goals as they operate within a biomedical model that by default pathologises excess weight and predetermines patients' goals as weight loss and/or management, regardless of patients' embodied experiences and desires. There remains a dearth of empirical research on what social justice-informed PCC looks like in practice with larger patients. This interview study fills a research gap by exploring the perspectives of 1) health practitioners (n=22) who take a critical, social justice-informed approach to weight and 2) larger patients (n=20) served by such practitioners. The research question that informed this paper was: What are the characteristics of social justice-informed PCC that play out in clinical interactions between healthcare practitioners and larger-bodied patients? We identified five themes, namely: 1) Integrating evidence-based practice with compassionate, narrative-based care; 2) Adopting a curious attitude about the patient's world; 3) Centring patients' own wisdom and expertise about their conditions; 4) Working within the constraints of the system to advocate for patients to receive equitable care; 5) Collaborating across professions and with community services to address the multifaceted nature of patient health. The findings illustrate that despite participants' diverse perspectives around weight and health, they shared a commitment to PCC by upholding patient self-determination and addressing weight stigma alongside other systemic factors that affect patient health outcomes.
以人为本的护理(PCC)被吹捧为改善患者体验和结果的有前途的模式,适用于一系列健康状况,包括肥胖症。虽然这种方法代表了从家长式和以疾病为中心的模式的重要转变,但我们认为,PCC 必须明确纳入社会正义视角,才能为健康和福祉创造最佳条件。我们认为,现有的关于肥胖症的 PCC 研究在实现社会正义目标方面还远远不够,因为它们是在生物医学模式内运作的,默认情况下将超重病态化,并预先确定患者的目标是减肥和/或管理,而不管患者的身体体验和愿望如何。在更大的患者中,实践中具有社会正义意识的 PCC 是什么样子的,缺乏实证研究。这项访谈研究通过探索 1)采取批判的、具有社会正义意识的体重方法的健康从业者(n=22)和 2)由此类从业者服务的更大体型患者(n=20)的观点,填补了研究空白。为本文提供信息的研究问题是:在医疗保健从业者和更大体型患者之间的临床互动中,体现社会正义意识的 PCC 的特征是什么?我们确定了五个主题,即:1)将基于证据的实践与富有同情心、基于叙事的护理相结合;2)对患者的世界采取好奇的态度;3)关注患者对自身状况的智慧和专业知识;4)在系统的限制内为患者争取公平的护理;5)跨专业和社区服务合作,解决患者健康的多方面性质。研究结果表明,尽管参与者对体重和健康有不同的看法,但他们都致力于 PCC,坚持患者的自决权,并解决体重耻辱问题以及影响患者健康结果的其他系统性因素。