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将以人为本的关怀和社会公正相结合:为大体重患者提供实践模式。

Integrating person-centred care and social justice: a model for practice with larger-bodied patients.

机构信息

School of Kinesiology, The University of British Columbia, Vancouver, British Columbia, Canada

School of Kinesiology, The University of British Columbia, Vancouver, British Columbia, Canada.

出版信息

Med Humanit. 2023 Sep;49(3):436-446. doi: 10.1136/medhum-2021-012351. Epub 2023 Jan 12.

Abstract

Person-centred care (PCC) has been touted as a promising paradigm for improving patients' experiences and outcomes, and the overall therapeutic environment for a range of health conditions, including obesity. While this approach represents an important shift away from a paternalistic and disease-focused paradigm, we argue that PCC must be explicitly informed by a social justice lens to achieve optimal conditions for health and well-being. We suggest that existing studies on PCC for obesity only go so far in achieving social justice goals as they operate within a biomedical model that by default pathologises excess weight and predetermines patients' goals as weight loss and/or management, regardless of patients' embodied experiences and desires. There remains a dearth of empirical research on what social justice-informed PCC looks like in practice with larger patients. This interview study fills a research gap by exploring the perspectives of 1) health practitioners (n=22) who take a critical, social justice-informed approach to weight and 2) larger patients (n=20) served by such practitioners. The research question that informed this paper was: What are the characteristics of social justice-informed PCC that play out in clinical interactions between healthcare practitioners and larger-bodied patients? We identified five themes, namely: 1) Integrating evidence-based practice with compassionate, narrative-based care; 2) Adopting a curious attitude about the patient's world; 3) Centring patients' own wisdom and expertise about their conditions; 4) Working within the constraints of the system to advocate for patients to receive equitable care; 5) Collaborating across professions and with community services to address the multifaceted nature of patient health. The findings illustrate that despite participants' diverse perspectives around weight and health, they shared a commitment to PCC by upholding patient self-determination and addressing weight stigma alongside other systemic factors that affect patient health outcomes.

摘要

以人为本的护理(PCC)被吹捧为改善患者体验和结果的有前途的模式,适用于一系列健康状况,包括肥胖症。虽然这种方法代表了从家长式和以疾病为中心的模式的重要转变,但我们认为,PCC 必须明确纳入社会正义视角,才能为健康和福祉创造最佳条件。我们认为,现有的关于肥胖症的 PCC 研究在实现社会正义目标方面还远远不够,因为它们是在生物医学模式内运作的,默认情况下将超重病态化,并预先确定患者的目标是减肥和/或管理,而不管患者的身体体验和愿望如何。在更大的患者中,实践中具有社会正义意识的 PCC 是什么样子的,缺乏实证研究。这项访谈研究通过探索 1)采取批判的、具有社会正义意识的体重方法的健康从业者(n=22)和 2)由此类从业者服务的更大体型患者(n=20)的观点,填补了研究空白。为本文提供信息的研究问题是:在医疗保健从业者和更大体型患者之间的临床互动中,体现社会正义意识的 PCC 的特征是什么?我们确定了五个主题,即:1)将基于证据的实践与富有同情心、基于叙事的护理相结合;2)对患者的世界采取好奇的态度;3)关注患者对自身状况的智慧和专业知识;4)在系统的限制内为患者争取公平的护理;5)跨专业和社区服务合作,解决患者健康的多方面性质。研究结果表明,尽管参与者对体重和健康有不同的看法,但他们都致力于 PCC,坚持患者的自决权,并解决体重耻辱问题以及影响患者健康结果的其他系统性因素。

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